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A Month of Awareness, A Lifetime of Memories

May 31, 2018 marked the final day of a historic Huntington disease (HD) Awareness Month.

Leading up to the month of May, volunteers all across the world were tirelessly canvasing and promoting the upcoming month of awareness in every way they could. Writing letters to request city proclamations, emailing countless buildings to add more Light It Up 4 HD sites to our roster and visiting local city officials to convince them to raise the HSC flag.

Let’s do it again for 2019!

Light It Up 4 HD

Click here for information on getting involved and a full list of sites confirmed so far!

Since 2015, the enthusiasm of our families and volunteers has made Light It Up 4 HD a cross Canada movement. Buildings, monuments and statues across Canada light up in blue and purple during May to raise awareness for Juvenile HD (in purple) and HD (in blue) and Huntington Disease Awareness Month. For areas that don’t have a monument in their community to light up, many use blue and purple lights at their own homes.

Check out all the sites that participated in 2018:

Flag Raisings

As part of May Awareness, volunteers across Canada request that buildings in their community fly the Huntington Society of Canada flag for a period of time during the month of May. The flag raises awareness and honours those affected by the disease.

Use this form to make a request for a building to fly the HD flag.

Email us at communications@huntingtonsociety.ca to obtain a flag once your building is confirmed.

Proclamations

Volunteers across Canada also strive to make HD Awareness Month official in their communities by having local government members proclaim May as HD Awareness Month.

Use this form to request your local government proclaims May as HD Awareness Month.

Events

Many events are planned to happen specifically during the month of May to coincide with HD Awareness Month.

Click here for a full listing of events near you!

Media

In an effort to gain national attention for HD Awareness Month, volunteers have been working hard with us to participate in media interviews and segments across the country.

Email us at communications@huntingtonsociety.ca if you’re interested in sharing your story!


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