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A Month of Awareness, A Lifetime of Memories

May 31, 2019 marked the final day of a historic Huntington disease (HD) Awareness Month.

Leading up to the month of May, volunteers all across the world were tirelessly canvasing and promoting the upcoming month of awareness in every way they could. Writing letters to request city proclamations, emailing countless buildings to add more Light It Up 4 HD sites to our roster and visiting local city officials to convince them to raise the HSC flag.

Let’s do it again in 2020!

Light It Up 4 HD

Click here for a full list of the sites that participated, worldwide!

Since 2015, the enthusiasm of our families and volunteers has made Light It Up 4 HD a cross Canada movement. Buildings, monuments and statues across Canada light up in blue and purple during May to raise awareness for Juvenile HD (in purple) and HD (in blue) and Huntington Disease Awareness Month. In areas that don’t have a monument in their community to light up, many use blue and purple lights at their own homes.

Check out this video montage of *just a few* of the global #LightItUp4HD sites in 2019:

Flag Raisings and Proclamations

As part of May Awareness, volunteers across Canada request that buildings in their community fly the Huntington Society of Canada flag for a period of time during the month of May. The flag raises awareness and honours those affected by the disease. Volunteers across Canada also strive to make HD Awareness Month official in their communities by having local government members proclaim May as HD Awareness Month.

Click here for a full list of sites!


Many events were planned to happen specifically during the month of May to coincide with HD Awareness Month.

Click here for a full listing of 2019 events!


In an effort to gain national attention for HD Awareness Month, volunteers have been working hard with us to participate in media interviews and segments across the country.

Email us at if you’re interested in sharing your story!

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