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About Us

Organizational Structure

The Huntington Society of Canada (HSC) is a national network of volunteer Chapters and Area Representatives, governed by a volunteer Board of Directors, and supported by full-time and part-time staff at the Society’s office. The network includes professional Family Service (FS) staff at Huntington Disease Resource Centres across the country, and part-time FS workers who are available on an on-call basis to provide support to HD families in areas of the country not served by a Resource Centre.

HSC’s network also includes the Huntington Society of Quebec. There is effective communication and collaboration between both organizations as independent organizations working harmoniously to find a meaningful treatment for Huntington disease.


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