HD Booklets & Publications

In an effort to expand our services to HD families, and to the general public, the following publications are available to download.

The Huntington Society is a charitable organization dependent on public support. A donation of any amount to the Society would help us to continue to make publications such as the ones listed here available to the public. 

We have listed our publications in alphabetical order by topic. You can access the publication by clicking on the link below the topic. 

Advanced Stages of HD

• What Advanced-Stage HD Looks Like

Caregivers Handbook

• Caregivers Handbook for Advanced stages of Huntington disease

Genetic Testing

• Genetic Testing

Juvenile Huntington Disease

• Juvenile HD

Loss and Grief

• Loss and Grief Coping with the Death of a Loved One

Occupational Therapy

• Occupational Therapy for People with Huntington’s Disease: Best Practice Guidelines

Personal Perspectives on Genetic Testing

• Perspectives Book

Physician’s Guide

• A Physician’s Guide to the Management of Huntington Disease 3rd edition

Physiotherapy Clinical Guidelines

• European Huntington’s Disease Network Physiotherapy Working Group

Resource  Strategies for Caring for Individual with HD

• Living Life to the Fullest: Families Share Their Ideas

Understanding Behaviour in Huntington Disease

• Understanding Behaviour in Huntington Disease (Third Edition)

Understanding Huntington Disease: A Resource for Families

• Understanding Huntington Disease