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Welcome to the Huntington Society of Canada

Family is at the heart of our community. Our families and volunteers tell a powerful story of caring people who pull together to improve the quality of life for Canadians impacted by HD. Huntington disease (HD) is a fatal hereditary brain disorder with devastating effects on both the mind and body. It is like having the symptoms of Alzheimer’s, Parkinson’s and ALS all in one disease.  Below is the latest news in the HD community.

September 20, 2017

Global Huntington’s Disease Patient Advocacy Organizations Unite to Form Huntington’s Disease Coalition for Patient Engagement (HD-COPE)

August 15, 2017

Four Friends Walk Across Spain To Raise Awareness For Hereditary Brain Disorder 

June 27, 2017

Huntington Disease Researcher Also Impacted By Disease Shares Her Story 

June 6, 2017

Saskatchewan Man Embarks on 700K Cross Province Walk for Huntington Disease

May 26, 2017

Tee Off For a Cure at The 10th Annual Camrose Golf Tournament

May 26, 2017

Join the Huntington Society of Canada’s Largest Fundraising Go-Kart Challenge!

May 24, 2017

Calgary Lights It Up For Huntington Disease Awareness

May 16, 2017

Huntington Society of Canada and Brain Canada Announce Second Recipient of the HD Clinician-Scientist-to-Patient Virtual Networks Grant Competition
La Société Huntington du Canada et la Fondation Brain Canada annoncent le deuxième récipiendaire de la ubvention Réseaux virtuels cliniciens-chercheurs-patients de la maladie de Huntington
Local Volunteer Lights Up Niagara Falls for Huntington Disease Awareness Month
Local Volunteer Lights Up Merchants Hotel in Selkirk for Huntington Disease Awareness

May 12, 2017

Vernon’s Run for Huntington Disease Celebrates 10 Years of Success
Volunteers Light Up BC Place for Huntington Disease Awareness Month
Join the 10th Annual Saskatoon Walk to Cure Huntington Disease
Become A Hero Of Huntington Disease at Annual Hike in Exeter
Run or Walk In Support of Families with Huntington Disease in Winnipeg
Join Us in Supporting Huntington Disease in Lafleche!
Walk to Cure Huntington Disease With Peterborough Chapter President

May 10, 2017

Local Belleville Woman’s Commitment to Huntington Disease Is Stronger Than Ever

May 9, 2017

Huntington Society of Canada Partners with Local Designer Chloë Angus to Launch Exclusive Button Wrap Design
Durham Woman Is Raising Flags For Huntington Disease Awareness
Local Volunteer Lights Up Pasadena Place for Huntington Disease Awareness Month

May 8, 2017

Armstrong Woman is Determined to Find A Cure For Huntington Disease
Toronto Woman Is Climbing A Rocky Road For Huntington Disease

May 5, 2017

Support Edmonton Fundraiser For Families Affected by Huntington Disease
Power of the Pierson Community, 5th Anniversary of Run for Huntington Disease
Local Volunteer Lights Up Various Sites in London for Huntington Disease Awareness
Join the Family Fun In Peterborough In Support of Huntington Disease
Join Huntington Society of Canada’s Durham Chapter for 4th Annual Walk for Huntington Disease

May 3, 2017

Local Volunteer Lights Up Edmonton Site For Huntington Disease Awareness

May 2, 2017

Victoria Woman Is Determined to Take Huntington Disease Out Of the Shadows

April 28, 2017

Lighting Up Charlottetown for Huntington Disease Awareness

April 27, 2017

Off to the Races To Find a Cure For Huntington Disease

April 26, 2017

Victoria Woman Vows To Bring Huntington Disease Out Of The Shadows
Fredericton City Hall Lights Up for Huntington Disease Awareness Month

April 24, 2017

Flag-Raising Ceremony at Sudbury City Hall Will Prompt Tears and Awareness For Heriditary Brain Disorder

April 21, 2017

Calling All Stampeders and Eskimos Fans, Win Tickets to Upcoming Game
Calling All Roughriders Fans, Win Tickets to Upcoming Game

April 20, 2017

Ontario Father-Daughter Duo Take on Huntington Disease

April 19, 2017

BC Man Organizes Annual Tattoo Event to Raise Funds and Awareness for Huntington Disease
From Bicycles to the Boardroom Table How a Peterborough Man Raises Funds and Awareness for Huntington Disease

April 12, 2017

Niagara Band Eli and the Straw Man Play Music That Matters in Kitchener

April 7, 2017

Niagara Band Eli and the Straw Man Play Music That Matters

April 4, 2017

Two Kitchener Charities Join Forces to Host Award Winning Author

March 31, 2017

Architectural Walking Tour for Families Affected by Huntington Disease

March 14, 2017

Toronto Family Gives Back to Huntington Disease Community

February 10, 2017

Youth Go Digital To Tackle Fatal Family Disease

January 27, 2017

Niagara Band Eli and the Straw Man Raise Funds for Huntington Disease With Homecoming Concert

January 24, 2017

Huntington Society of Canada Celebrates Champions of Hope Month

December 20, 2016

Ontario Volunteer Contributes to $5 Million Cross-Canada Campaign for Huntington Disease

November 22, 2016

Making A Difference For Ontario Families Facing Fatal Disease One Beautiful Bloom At A Time

November 14, 2016

Making A Difference For Alberta Families Facing Fatal Disease One Beautiful Bloom At A Time

November 01, 2016

Amaryllis Bulbs Inspire Hope for Families Affected By Huntington Disease During National Amaryllis Month

October 25, 2016

World-Renowned International Huntington Researchers to be Featured at the Huntington Society of Canada’s National Conference

October 24, 2016

Halifax Volunteer is Making a Difference for Families Facing Fatal Disease  One Beautiful Bloom At A Time

October 13, 2016

Society Huntington du Canada Partners with Brain Canada_ Oct 2016
Huntington Society of Canada Partners with Brain Canada_Oct 2016

October 04, 2016

World-Renowned International Huntington Researchers to be Featured at Huntington Society of Canada’s National Conference

September 28, 2016

Support Huntington Disease in Paul Paone’s 3 on 3 Memorial Basketball Tournament
Get in the Holiday Spirit at Family Christmas Concert for Huntington Disease

September 15, 2016

Join the Huntington Society of Canada’s Largest Fundraising Go-Kart Challenge for Huntington Disease!

August 18, 2016

Be a Hero! Join the Grand River Chapter for Hope 4 A Cure Walk & Run
Chatham Woman Jumps in 5 Great Lakes for Huntington Disease and Lupus!
Join Huntington Society Volunteers in Learning to Thrive with a Chronic Illness in Orillia
Join the 19th Annual Hike4Huntington in North Vancouver
Join the Huntington Society of Canada’s largest fundraising Go-Kart Challenge in Mississauga!
Join the Huntington Society of Canada’s Largest Fundraising Go-Kart Challenge in Winnipeg!

August 16, 2016

Go the Distance for Huntington Disease with Bert As He Runs Across 2 Provinces

July 21, 2016

NF2_Cycling Duo Reaches End of Epic Cross Country Ride to Raise Awareness for Huntington Disease
NF2_Cycling Across Canada to Raise Awareness for Huntington Disease

July 07, 2016

PEI_Cycling Across Canada to Raise Awareness for Huntington Disease
NS_Cycling Across Canada to Raise Awareness for Huntington Disease
NF_Cycling Across Canada to Raise Awareness for Huntington Disease

July 04, 2016

NB_Cycling Across Canada to Raise Awareness for Huntington Disease

June 02, 2016

Ontario_Cycling Across Canada to Raise Awareness for Huntington Disease

May 31, 2016

Manitoba_Cycling Across Canada to Raise Awareness for Huntington Disease

May 27, 2016

Saskatchewan_Cycling Across Canada to Raise Awareness for Huntington Disease

May 24, 2016

PSA_Meet Rob. He lives with Huntington Disease.
Kelowna Volunteer Lights Up Spirit of Sail for Huntington Disease Awareness Month

May 20, 2016

Local Volunteers Lights Up 3D Toronto Sign for Huntington Disease Awareness Month
Local Volunteers Light Up Halifax City Hall for Huntington Disease Awareness Month

May 16, 2016

PSA_Together, we are going to cure Huntington Disease.
Edmonton Volunteer Lights Up High Level Bridge for Huntington Disease Awareness Month

May 12, 2016

Ottawa Mayor Proclaims May as Huntington Disease Awareness Month
Kamloops_Cycling Across Canada to Raise Awareness for Huntington Disease
Brockville Volunteer Lights Up Niagara Falls for Huntington Disease Awareness Month

May 11, 2016

Local Volunteer Lights Up City of Welland Bridge for Huntington Disease Awareness Month

May 10, 2016

Cycling Duo Start Epic Journey from Stanley Park, Vancouver as they Cross Canada to Raise Awareness for Huntington Disease

May 09, 2016

PSA_Now is the most exciting time in the history of Huntington Disease Research.

May 04, 2016

Local Volunteers Raise Flag in Whitby for Huntington Disease Awareness Month
B.C. Volunteer Raises Awareness for Huntington Disease by Creating Ribbons of Hope

May 03, 2016

Local Volunteers Light Up The Forks in Winnipeg for Huntington Disease Awareness Month

May 02, 2016

PSA_Youth Volunteer Jaclyn’s got a whole team on her side
Guelph Volunteer Lights Up CN Tower for Huntington Disease Awareness Month

April 29, 2016

Local Volunteer Lights Up Several Calgary Monuments for Huntington Disease Awareness Month

April 27, 2016

PSA_Meet Lindsay. She lives with Huntington Disease
Guelph Helps Local Volunteer Raise Awareness for Huntington Disease (HD)
Sudbury Mayor Proclaims May as Huntington Disease Awareness Month

April 21, 2016

Huntington Society of Canada Partners with Eli and the Strawman (ON2)

April 18, 2016

Cycling Across Canada to Raise Awareness for Huntington Disease

April 14, 2016

Bill S201 Moves to House of Commons

March 29, 2016

Huntington Society of Canada Partners with Eli and the Straw Man

February 12, 2016

Huntington Society of Canada Celebrates Champions of Hope Month

January 26, 2016

Hydro One Employees Champion the Huntington Society of Canada through Fundraising Initiatives

November 20, 2015

Huntington Society of Canada Partners with Brain Canada Creating HD Clinician-to-Scientist-to-Patient Virtual Networks

November 19, 2015

November is Amaryllis Month

November 17, 2015

Youth Rally Together – YPAHD Day in Calgary
Youth Rally Together – YPAHD Day in Halifax
Youth Rally Together – YPAHD Day in Toronto

October 19, 2015

Amaryllis Bulbs Inspire Hope for Families Affected by Huntington disease

September 15, 2015

Huntington Society of Canada Coordinates Global Initiative

August 27, 2015

Huntington Society of Canada Announces Be Brave, Be Bold, Be Ready: Clinical Trial Readiness Preparation Initiative

July 14, 2015

Huntington Society of Canada: Joins Forces with SPARTAN RACE Workout

Huntington Society of Canada Announces 2015 Research Competition Recipients

June 9, 2015

The Canadian Coalition for Genetic Fairness comments on anti-genetic discrimination legislation

June 8, 2015

Huntington Society of Canada launches interactive clinical trial map

May 7, 2015

Newfoundland man raises awareness for Huntington disease to help his wife

May 7, 2015

Toronto photographer raises awareness for Huntington disease through photobook

May 7, 2015

Quebec woman raises awareness for Huntington disease across Canada

May 7, 2015

Ontario woman raises awareness for Huntington disease

May 7, 2015

Niagara man raises awareness for Huntington disease

May 6, 2015

Victoria man raises awareness for Huntington disease

April 27, 2015

Brockville woman raises awareness for Huntington disease to help her daughter

April 23, 2015

Huntington Society Celebrates Huntington Disease Awareness Month

April 17, 2015

Local Peterborough man honoured for his efforts to raise funds and awareness for Huntington disease

April 16, 2015

Local Toronto woman honoured for serving on the Huntington Society of Canada’s Board of Directors

April 15, 2015

New Brunswick woman honoured for 40 years of raising funds and awareness for Huntington disease

April 14, 2015

Local Calgary woman gives support to youth affected by Huntington disease

April 13, 2015

Local Toronto woman organizes annual golf tournament to raise funds and awareness for Huntington disease

March 30, 2015

Okanagan man brings community together to raise funds and awareness for Huntington disease

March 24, 2015

Local Durham woman dreams big to raise funds and awareness for
Huntington disease

February 5, 2015

Huntington Society of Canada Celebrates Champion of Hope Month

January 15, 2015

Huntington Society of Canada Opens 2015 Research Competitions

January 7, 2015

Toronto Photographer Captures the Trials and Triumphs of Huntington Disease

December 16, 2014

Parliamentary Debate and Government Commitments on Genetic Fairness to Deliver Results in 2015

December 12, 2014

Huntington Society of Canada’s Amaryllis Campaign a Success

December 9, 2014

Bowmanville Long Term Care Facility Raises Awareness for Huntington Disease

November 24, 2014

Local Business Gets Involved with the Amaryllis Campaign

October 20, 2014

Winnipeg woman hopes conference will draw attention to fatal disease

October 8, 2014

Huntington Society of Canada’s Amaryllis Campaign Inspires Hope for Families Affected by Huntington Disease

September 29, 2014

World-Renowned International Huntington Neurologists and Researchers to be featured at the Huntington Society of Canada’s National Conference

September 26, 2014

New industry code on genetic testing adopted by life and health insurers leaves Canadians exposed

September 10, 2014

Silencing Huntington Disease?

September 10, 2014

Taking a Pie in the Face for Huntington Disease

July 14, 2014

The Canadian Coalition for Genetic Fairness Supports the Office of the Privacy Commissioner of Canada for their position on the use of Genetic Test Results by Insurance Companies

May 27, 2014

Make Genetic Discrimination an Issue in the Upcoming Ontario Provincial Election

May 20, 2014

Inspiring Canadian woman raises awareness for Huntington disease

May 6, 2014

Inspiring Canadian family raises awareness for Huntington disease

April 30, 2014

Do You Really Want to Know about Genetic Discrimination in Canada?

April 4, 2014

Local woman volunteers for the Huntington Society of Canada in memory of her mother
Fantastic local woman volunteers her time to Huntington Society of Canada
Local university student volunteers for the Huntington Society of Canada on her study breaks

February 24, 2014

Dalhousie University’s Pharmacy student honoured as a national champion

February 7, 2014

Ontario woman is honoured as a national champion

January 30, 2014

Alberta woman is honoured as a national champion for the Huntington Society

January 17, 2014

HSC funds breakthrough research to benefit many movement disorder diseases

November 14, 2013

The Huntington Society of Canada launches New Website

November 4, 2013

CCGF- MPP introduces Bill to Amend Human Rights Code

October 18, 2013

Senate Leader Re-tables Bill To End Genetic Discrimination

October 17, 2013

CCGF Applauds Federal Government on 2013 Throne Speech

September 30, 2013

Calgary Case Underscores Need for genetic Privacy Protection

July 30, 2013

McMaster Researcher Major Huntington’s Research Breakthrough

 


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