2020 Postcard from Palm Springs
Highlights from the 2020 CHDI HD Therapeutics Conference are now here! This year’s Postcard covers HTT-lowering therapeutics, including an
Read more
We are excited to announce that registration for our free 2022 National Virtual Conference, #HDCon22, is now OPEN! This event takes place:
Saturday, February 26, 12:00 to 5:30 p.m. EST
Sunday, February 27, 12:00 to 5:30 p.m. EST
Click here for more details and registration!
We can’t wait to offer you informative sessions and the opportunity to talk and connect with community members. Even if you can’t attend the sessions live, you can still register for access to select presentation recordings for free.
CONFERENCE SCHEDULE AT A GLANCE
Please note the schedules below are subject to change.
Click here to read our session descriptions.
Click here to read our speaker bios.
Saturday, February 26
12:00 PM | Welcome to the National Virtual Conference – Shelly Redman |
12:30 PM | Opening Keynote – What Clinical Trials Taught Us and How HD Therapeutic Development is Accelerating in 2022 – Ray Truant |
1:15 PM | Anticipatory Grief – What is it and how do we cope with it? – Corrie Sirota
HD101 – Barb Horner, Corrina Masson & Bernie Modrovsky A Legacy: Gifting Biological Samples to Advance HD Research – Stephanie Bortnick |
2:00 PM | Virtual Exhibitor Booths |
3:15 PM | Community Services Panel – Roz Irvine, Bev Farrell & Sheri Mayhew
Survivors Guilt – Dr. Alan Fung & Angie Dale |
4:00 PM | Social Time |
Sunday, February 27
12:00 PM |
Engaging your Chapter Virtually During COVID – Annie Vanexem Clinical Trials in Canada – Tiago Mestre & Mark Guttman Family Planning & Genetic Testing – Clare Gibbons & Susan Conacher |
12:45 PM |
MAID – June Churchill & Kerrie Hale HD201 – Jimmy Pollard |
2:00 PM | HD Clinic Panel – Dr. Vern Bennett, Dr. Oksana Suchowersky, Jennie Mah, Erin Stephen & Sarah Lachance
Relationships and Boundaries – Rhonda Romolock, Corey Janke, Elaine Smith & Marthe Gautreau |
2:45 PM |
Finding Hope, Humor and Heart in Caregiving – Elaine K. Sanchez |
We are building on the success of our 2021 National Virtual Conference. We had more than 800 people register for free, reaching individuals across Canada and the world who may not have had an opportunity to participate otherwise due to financial and geographic barriers. We expanded our reach like never before. In fact, 49% were first-time attendees. Individuals tuned in from over 28 countries, including USA, UK, Brazil, Germany, India and New Zealand. We’re excited to apply our learnings and successes from the past year to 2022’s offerings and we hope you will join us!
Be sure to keep checking your email and our social media channels for the latest conference news.
Wondering what to expect at a virtual conference? We have sessions from last year’s virtual conference on our YouTube channel here: https://www.youtube.com/playlist?list=PL6RvnrMHge_qPDQ_cY3-dFbJIslrqbOcQ