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2022 National Virtual Conference

We are excited to announce that registration for our free 2022 National Virtual Conference, #HDCon22, is now OPEN! This event takes place:

Saturday, February 26, 12:00 to 5:30 p.m. EST

Sunday, February 27, 12:00 to 5:30 p.m. EST

Click here for more details and registration!

We can’t wait to offer you informative sessions and the opportunity to talk and connect with community members. Even if you can’t attend the sessions live, you can still register for access to select presentation recordings for free.


Please note the schedules below are subject to change.

Click here to read our session descriptions.

Click here to read our speaker bios.

Saturday, February 26

 12:00 PM Welcome to the National Virtual Conference – Shelly Redman
12:30 PM Opening Keynote – What Clinical Trials Taught Us and How HD Therapeutic Development is Accelerating in 2022 – Ray Truant
1:15 PM Anticipatory Grief – What is it and how do we cope with it? – Corrie Sirota

HD101 – Barb Horner, Corrina Masson & Bernie Modrovsky

A Legacy: Gifting Biological Samples to Advance HD Research – Stephanie Bortnick

2:00 PM Virtual Exhibitor Booths
3:15 PM Community Services Panel – Roz Irvine, Bev Farrell & Sheri Mayhew

Survivors Guilt – Dr. Alan Fung & Angie Dale

4:00 PM  Social Time

Sunday, February 27

12:00 PM 

Engaging your Chapter Virtually During COVID – Annie Vanexem

Clinical Trials in Canada – Tiago Mestre & Mark Guttman

Family Planning & Genetic TestingClare Gibbons & Susan Conacher

12:45 PM

MAIDJune Churchill & Kerrie Hale

HD201Jimmy Pollard

2:00 PM HD Clinic Panel – Dr. Vern Bennett, Dr. Oksana Suchowersky, Jennie Mah, Erin Stephen & Sarah Lachance

Relationships and BoundariesRhonda Romolock, Corey Janke, Elaine Smith & Marthe Gautreau

2:45 PM

Finding Hope, Humor and Heart in CaregivingElaine K. Sanchez

We are building on the success of our 2021 National Virtual Conference. We had more than 800 people register for free, reaching individuals across Canada and the world who may not have had an opportunity to participate otherwise due to financial and geographic barriers. We expanded our reach like never before. In fact, 49% were first-time attendees. Individuals tuned in from over 28 countries, including USA, UK, Brazil, Germany, India and New Zealand. We’re excited to apply our learnings and successes from the past year to 2022’s offerings and we hope you will join us!

Be sure to keep checking your email and our social media channels for the latest conference news.

Wondering what to expect at a virtual conference? We have sessions from last year’s virtual conference on our YouTube channel here:

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