HSC Fact Sheets

In an effort to expand our services to HD families, and to the general public, the following publications are available to download. The Huntington Society is a charitable organization dependent on public support. A donation of any amount to the Society would help us to continue to make publications such as the fact sheets listed here available to the public. 

We have listed our most popular fact sheets to start, and then in alphabetical order by topic after that. You can access the fact sheets by clicking on the link below the topic.

When printing a fact sheet, select “Fit” under “Page Sizing & Handling” so the edges of the fact sheet do not get cut off by your printer.

Please note that we are currently in the process of translating all HSC fact sheets to the French language, with the goal of having all available by end of 2019.

HD Facts

• What is HD?

English	Version Française
Have you M.E.T. Huntington Disease?	Qu’en savez-vous sur la maladie de Huntington?

• Juvenile HD

Caring for People Affected by HD

• Tips: When Working with Individuals with Huntington Disease
• Caring for Carers and Families with HD
• Cognitive Changes
• Improving Communication in Huntington Disease
• Transitioning to Long-Term Care

At-Risk

• Living At-Risk of HD

Behaviour

English	Version Française
Responsive Behaviour in Huntington Disease	Comportements réactifs et MH

Children

• A Child’s Response to HD
• Helping Children Cope
• Talking to Children

Clinical Trials

English	Version Française
What is a Clinical Trial?	Qu’est-ce qu’un essai clinique?
Clinical Trials: Questions to Consider	Essais cliniques – Questions à poser

Criminal Offences

• Criminal Offences, Incarceration & Huntington Disease

Dental

• Dental Care

Depression

• Depression and HD

Eating

• Eating and Swallowing
• Feeding Tubes

Driving

• Driving and HD

Educational Modules

• A list of available presentation Educational Modules

End-of-Life Care

• End-of-Life Care in HD

Exercise

• Exercise and HD

Family Planning

• Family Planning

Future Planning

• Future Planning

Genetic Discrimination

• Genetic Discrimination

Genetic Testing

• Genetic Testing
• Predictive Testing of Minors

Home Safety for People with HD

• Home Safety for People With HD

Intermediate Alleles

• Intermediate Alleles

Physiotherapy

• Physiotherapy Guidelines Courtesy of European Huntington’s Disease Network (English)
• Physiotherapy Guidelines Courtesy of European Huntington’s Disease Network (French)

Risk Management

• Minimizing Risk in Huntington disease for Healthcare Professionals

Services from HSC

• We Are Here To Help

Sexuality

• Sexuality

Tissue Donation

• Brain and Tissue Donation

Travelling

• Travelling with Huntington Disease (English)
•  Travelling with Huntington Disease (French)

Youth Mentorship Program

• Youth Mentorship Program

OTHER  HD RESOURCES

The Huntington Society of Canada is committed to working with families affected by HD and health and social services professionals to enable them to better understand Huntington disease.

HSC collaborates globally to to ensure the most up-to-date information is available. We invite you to explore our HD resources.

Access our resources by clicking on the links below:

HSC Brochures	HSC Booklets & Publications	Other Resources