UPDATE FROM THE HSC CEO
April 6, 2020
Ours is a different world this April as countries around the globe implement various social distancing measures to help stop the spread of COVID-19 and #flattenthecurve.
As many of you likely know, the Huntington Society of Canada (HSC) has implemented a number of practices to help keep our staff, volunteers and the Huntington disease (HD) community that we serve, safe. You can read more about these at https://www.huntingtonsociety.ca/covid-19-a-message-from-our-ceo/.
HSC continues to follow the regulations in place at the federal, provincial and municipal levels. Social distancing and self-isolation are a critical part of controlling COVID-19. Unfortunately, this means that cities, towns and other municipalities are discouraging public gatherings, which includes the flag raisings normally planned as part of HD Awareness Month. At this time, HSC is asking all volunteers working on behalf of HSC to withdraw any flag raising or other public gathering requests associated with HD Awareness Month.
It is also important to remember, as we ask for sites to #LightitUP4HD, that many municipalities are currently overwhelmed with demands on their public health units and other pressing concerns around COVID-19 containment. With limited staff available in municipal offices it is difficult to secure commitments for #LightItUp4HD requests. At this time, HSC encourages volunteers to continue with requests but to be mindful that other priorities may be more pressing in May, 2020. Do not be disheartened with lack of response. This is a disruptive year and any site that we manage to get on board is a success story.
Consider May Awareness Efforts at the Residential Level
While the number of landmarks participating in #LightItUp4HD may be lower in 2020, here are some local ways (with social distancing in mind) that you can create awareness about HD at home:
- Create posters for windows and doors
- Install purple or blue porch/Christmas lights
- Hang home-made HD ornaments on a tree in your front yard
- Draw on your sidewalk or driveway with sidewalk chalk
- Post on social media and include pictures of the above – challenge friends to participate
- Consider a Facebook fundraiser during May to raise awareness and funds for valuable HSC work such as family services outreach and research support
We can still make HD Awareness Month a success – even if it’s virtual – in May 2020!
Thank you for what you do. Remember to stay safe.
Huntington Society of Canada
Help us light up the world!
Together let’s raise the visibility of Juvenile HD and HD.
Thanks to local and national volunteers our LightItUp4HD campaign is gaining lots of attention. With the encouragement from volunteers across Canada (and even the globe!) we are expanding #LightItUp4HD. Let’s light up the world in purple and blue, for Juvenile Huntington disease (JHD) and Huntington disease (HD), throughout the month of May 2019!
The more days we can light up, the more awareness we will bring to HD. Our goal is to #LightItUp4HD, somewhere in the world, each day of the month. Rather than one day, we are looking to celebrate May Awareness each and every day of May 2020.
Want to see how we did last year? Check out this video from 2019’s #LightItUp4HD. In Canada, 55 sites participated in #LightItUp4HD, while another 114 international buildings, monuments and other structures lit up in blue for HD and/or purple for JHD. In 2019, an international total of 169 sites participated – nearly 50 more than in 2018.
Confirmed sites (Check back often):
- Calgary Tower: Calgary, AB – May 1, 2020
- Telus Spark Centre: Calgary, AB – May 1, 2020
- 8th Ave. Canopy Lights/Galleria Tree Sculptures (by Bankers Hall): Calgary, AB – May 1 2020
- Olympic Plaza: Calgary, AB – May 1, 2020
- Glenbow Museum/Arts Common: Calgary, AB – May 1, 2020
- Southern Alberta Jubilee Auditorium: Calgary, AB – May 1, 2020
- Reconciliation Bridge: Calgary, AB – May 1, 2020
- High Level Bridge: Edmonton, AB – May 22, 2020
- BC Place: Vancouver, BC – May 15, 2020
- Science World: Vancouver, BC – May 15, 2020
- RBC Convention Centre: Winnipeg, MB: May 1, 2020
Newfoundland and Labrador
- Government House: St. John’s, NL – May 6, 2020
- City Hall: Halifax, NS – May 9-11, 2020
City Hall: Guelph, ON – May 1, 2020CANCELLED DUE TO COVID-19. Flag raising May 4-8, 2020.
- CN Tower: Toronto, ON – May 6, 2020
- Signature Sign: Hamilton, ON – May 11-15, 2020
- Pedestrian Bridge and Cambridge Sign: Cambridge, ON – May 25-May 29, 2020
- City Hall: Oakville, ON – May 25-31, 2020
- Penman’s Dam: Paris, ON – May 4 -6, 2020
Western Australia (State)
- Optus Stadium, Perth: May 1-2, 2020
- Elizabeth Quay: May 1-2, 2020
- The Belltower, Perth: May 1-2, 2020
- Matagarup Bridge: May 1-2, 2020
- Graham Farmer Freeway Tunnel: May 1-2, 2020
- Mount street pedestrian Bridge: May 1-2, 2020
- Sky Ribbon Bridge: May 1-2, 2020
- Council House: May 1-2, 2020
- Trafalgar Bridge: May 1-2, 2020
- Yagan Square: May 1-2, 2020
- Koombana Footbridge: May 1-2, 2020
- Mandurah Bridge: May 1-2, 2020
- Archaeological Research Unit (University of Cyprus): Nicosia – May 22-31, 2020
- The Cyprus Institute of Neurology and Genetics: Nicosia – May 22-31, 2020
- Cyprus Museum: Nicosia – May 22-31, 2020
- Water Tower, Century Hall: Bochum – May 11 – May 31, 2020
- Kiekippel Vineyard: Hergersdorf (Hessen) – May 22-24, 2020
- Mansion House: Dublin – May 11, 2020
- Rock of Cashel: County Tipperary – May 11, 2020
- Convention Centre: Dublin – May 15, 2020
Strathclyde University Technology and Innovation Centre (TIC): Glasgow – May 9-11, 2020CANCELLED DUE TO COVID-19
- Son of Espaces Hospital: Palma de Mallorca – May 5, 2020
United States of America
- Skydance Bridge: Oklahoma City, OK – May 1, 2020