One of the Huntington Society of Canada’s key roles is advocating for individuals and families affected by HD. We work to strengthen the voices of Canadians living with HD by building strong relationships within the community and using those connections to enhance our services. HSC advocates at international, national, and provincial levels to ensure the needs of those impacted by HD are heard.
Canadians affected by HD continue to face significant barriers to receiving the specialized care and support they need. A new multi-stakeholder report commissioned by HSC identifies critical gaps across the healthcare system, including limited access to knowledgeable clinicians, inconsistent care, inadequate caregiver supports, and challenges accessing long-term care. The report also outlines opportunities to improve education, coordination, and services for families across Canada.
We contribute to the advocacy efforts of the following organizations and initiatives through committee and board participation.
Building an Advocacy Framework
