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Community Education Forums

This year, HSC is pleased to offer three virtual Community Education Forums (CEFs), as part of a seasonal series.

With our CEFs, HSC provides a forum wherein individuals, their carers and families can meet to learn about the most recent updates in HD, network with community members and perhaps most importantly, have the opportunity to have their questions answered by leading professionals who specialize in HD.

Thank you to Roche for generously sponsoring this series.


The third and final virtual CEF will go live on Feb. 27, 2021.

Feb. 27, 2021 Community Education Forum
1:30 P.M. – 3:00 P.M. EST

Genetic Testing

Join Clare Gibbons (Genetic Counselor at North York General Hospital in Toronto), as we learn about predictive and diagnostic genetic testing for Huntington disease, from basic science to making the decision to be tested. This session will also provide information about the genetic components of some current treatment trials.

About Clare:

Clare Gibbons received a Master of Science degree in Genetic Counseling from Sarah Lawrence College in 1996 and then joined the Genetics Program at North York General Hospital in Toronto where she currently works as the manager of Clinical Genetics.  Throughout her career, she has participated in the care of a wide variety of patients and has been a member of the North York General Hospital Huntington Disease Multidisciplinary team for 20 years.  Clare is currently a research coordinator for Enroll HD and has previously been involved in clinical drug trials for the treatment of HD.  She has also been an investigator in clinical research studies involving computerized cognitive rehab for people with HD and talking to children about their risk for HD.

CLICK BUTTON TO REGISTER
FOR FEB. 27, 2021 CEF.


PAST SEASONAL SERIES CEFs


Nov. 14 , 2020 Community Education Forum
HDBuzz Research Update

With multiple huntingtin-lowering trials in progress and more on the way, it’s a time of great progress and excitement in research to develop and test new drugs to fight Huntington disease (HD). But lots of new therapies means more research and terminology that could confuse and overwhelm, and more hype that could lead to disappointment. HDBuzz editors, Dr. Jeff Carroll and Dr. Ed Wild are here to explain what’s going on, what’s coming soon, what it all means, and where to direct your excitement and energy in order to help in the fight.

Watch the Recording

If you were unable to join us on Nov. 14, no problem!  You can watch the  entire video recording of this  second virtualCEF on our YouTube channel, by clicking here.

 


May 30, 2020 Community Education Forum
Learn to Fill Your Cup: Simple Tools to Relieve Stress and Caregiver Burnout and Optimize Health

Join Natalie Marnica, as together we explore information and resources needed to reduce stress and anxiety, build resilience and care-give sustainably. Learn how chronic stress affects your body, and how mind-body approaches, including conscious breathing, meditation, mindful movement and lifestyle habits, can help to alleviate chronic stress, reverse caregiver burnout and improve overall health and wellbeing.

Watch the Recording

If you were unable to join us on May 30, no problem!  You can watch the  entire video recording of this first virtual CEF on our YouTube channel, by clicking here.

 


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