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2019 Community Education Forum


The Huntington Society of Canada invites you to attend its annual Community Educational Forums for presentations on research and caregiving at over 20 sites across Canada, on a variety of dates (listed below).

Every other year, HSC provides a live forum wherein patients and carers can meet to learn about the most recent updates in HD, network with other patients and perhaps most importantly, have the opportunity to have their questions answered by leading professionals who specialize in HD.

This year, the Huntington disease community’s excitement is palpable, because there is hope for treatments that target the root cause of HD. As many of our family members have expressed to us, for the first time that they can recall, they have “hearts full of hope”.


Click here to register for a local Community Education Forum today!

Community Education Forum Agenda:

  • Managing Clinical Trial Expectations– Dr. Michael Hayden, CM OBC MB ChB PhD FRCP(C) FRSC
In his presentation, Dr. Michael Hayden discusses the different components of each phase of a research trial and how there are many HD trials being conducted with different approaches, not just one. He emphasizes the importance of managing our expectations in this exciting time of research, but also encourages us to have realistic hope for the future of HD.
  • A New Era of HD Therapeutic Research–  Dr. Ed Wild, MRCP PhD
For the first time since the HD gene was discovered in 1993, a new era of drug trials, targeting the known cause of HD are underway. Join Dr. Ed Wild to find out how they’re going, what’s next, and how together, we can create a new future where HD is less of a problem for those affected.


Click here to register for one or more of our sites today!


Can’t attend in person? Consider participating in:

At our Virtual CEF on November 2, 2019, join George Yohrling, Senior Director, Mission and Scientific Affairs, Huntington’s Disease Society of America, as we explore “Hope and Progress in the Huntington Disease Clinical Pipeline”. Find out how trials are going, what’s next, and how together, we can create a new future where HD is less of a problem for those affected.

Find a local Community Education Forum location near you:




October 26
10:00 a.m. – 2:30 p.m.
CNIB Meeting Room, 10-11A Street NE
Plus! Local presentations from Dr. Sarna (neurologist) and Linda Maclaren (genetic counselor).



November 19
6:00 p.m. Start
Edwards Centre, 334 4th Ave N



November 9
1:00 p.m. – 4:00 p.m.
Roberta’s Place Retirement Home, 489 Essa Road, Barrie
Plus! Enjoy a local presentation from Yvonne Heath, a favourite at the HSC 2018 National Conference. Yvonne will speak about just showing up in times of grief.
Refreshment will be provided.


October 25
1:00 p.m. – 4:00 p.m.
Providence Care, 470 Dundas Street, Unit 63, Belleville
Plus! Local presentations from Dr. Chu (neuropsychologist) and Danna Hull (genetic counselor).
Refreshment will be provided.

Niagara  (St. Catharines)

November 6
6:30 p.m. – 9:00 p.m.
St. Catharines Collegiate, 34 Catherine Street
Plus! Enjoy a local presentation from Dr. Tamara Maiuri on research, as well as an opportunity to learn about updates on the 2020 National Conference, to be held in Niagara Falls.
Refreshment will be provided.


Click here to register for one or more of our sites today!
Is your site not listed? Contact us to express interest in attending if a site near you opens, or to offer to host a CEF in your area – or 1-800-998-7398.


British Columbia


May 4
1:00 p.m. – 4:00 p.m.
Room 2108, Centre for Molecular Medicine and Therapeutics (CMMT), 950 W 28th Avenue


October 19
1:00 p.m. – 4:00 p.m.
Victoria Public Library- Central Branch, 735 Broughton Street



April 13
10:30 a.m. – 2:30 p.m.
Buchanan Centre, 11209 86 Street NW

Grand Prairie

May 2
6:30 p.m. – 9:30 p.m.
Redwood Inn & Suites, 8117-99 Street, Clairmont



October 15
Sunrise Branch Library – Sandra Schmirler Leisure Centre, 3130E Woodhams Drive
Refreshment will be provided.



September 30
5:00 p.m. – 7:30 p.m.
Brandon Public Library, 1-710 Rosser Ave., Brandon


September 26
7:00 p.m. – 9:30 p.m.
Society for Manitobans with Disabilities, 825 Sherbrook Street
Plus! Local presentation from Dr. Udow (neurologist)!


Durham Region

October 5
11:00 a.m. – 2:30 p.m.
Garnet B. Rickard Recreation Complex, Hall 2, 2440 Highway 2, Bowmanville
Plus! Yvonne Heath will present ‘I Just Showed Up’, which received many accolades at HSC’s 2018 National Conference!


October 5
1:00 p.m. – 4:00 p.m.
Science Teaching Complex (STC), University of Waterloo
Plus! Dr. Dale Martin will be available to answer your trial-related questions, and to provide a tour of his HD lab, housed within the STC at the University of Waterloo.


October 19
10:00 a.m. – 3:00 p.m.
Parkwood Hospital, Auditorium, 550 Wellington Road
Plus! Enjoy a local presentation from Jim Pollard on Hurry Up and Wait: Thinking about Thinking with HD.
Lunch will be provided.


June 8
1:30 p.m. – 4:30 p.m.
Alzheimer Society of Peel, 60 Briarwood Avenue


October 19
12:00 p.m. – 4:00 p.m.
Royal Ottawa Auditorium, 1145 Carling Avenue
Plus! Enjoy a local presentation from Dr. Tiago Mestre about the Roche trial.


September 25
7:00 p.m. – 9:00 p.m.
Golden Manor (Auditorium), 481 Melrose Blvd, Timmins
Plus! Enjoy a local presentation from Linda Dagenais (physiotherapist).


October 19
10:00 a.m. – 4:00 p.m.
Runnymede Healthcare Centre, 625 Runnymede Road
Plus! Enjoy a local presentation from Yvonne Heath, as well as a presentation on living well with HD from Natalie Marnica.

Atlantic Canada

Fredericton, New Brunswick

June 8
1:45 p.m. – 4:15 p.m.
Stepping Stone Senior Center, 15 Saunders Street, Fredericton

Quispamsis, New Brunswick

May 25
11:00 a.m. – 2:45 p.m.
Kennebecasis Public Library, 1 Landing Court

Conception Bay North, Newfoundland

June 8
11:00 a.m. – 3:00 p.m.
Community Room, Pte. Josiah Squibb Memorial Pavilion,  3-6 Earles Lane, Carbonear

St. John’s, Newfoundland

September 26
6:30 p.m. – 8:30 p.m.
Admiralty House Communications Museum, 365 Old Placentia Road, Mount Pearl
Plus! Enjoy a local presentation from Dr. Squarey.

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