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2019 Community Education Forum

Generously sponsored by:

The Huntington Society of Canada invites you to attend its annual Community Educational Forum for presentations on research and caregiving.

Every other year, HSC provides a live forum wherein patients and carers can meet to learn about the most recent updates in HD, network with other patients and perhaps most importantly, have the opportunity to have their questions answered by leading professionals who specialize in HD.

This year, the Huntington disease community’s excitement is palpable, because there is hope for treatments that target the root cause of HD. As many of our family members have expressed to us, for the first time that they can recall, they have “hearts full of hope”.

 

Click here to register today!

Community Education Forum Agenda:

  • Managing Clinical Trial Expectations– Dr. Michael Hayden, CM OBC MB ChB PhD FRCP(C) FRSC
In his presentation, Dr. Michael Hayden discusses the different components of each phase of a research trial and how there are many HD trials being conducted with different approaches, not just one. He emphasizes the importance of managing our expectations in this exciting time of research, but also encourages us to have realistic hope for the future of HD.
  • A New Era of HD Therapeutic Research–  Dr. Ed Wild, MRCP PhD
For the first time since the HD gene was discovered in 1993, a new era of drug trials, targeting the known cause of HD are underway. Join Dr. Ed Wild to find out how they’re going, what’s next, and how together, we can create a new future where HD is less of a problem for those affected.
  • Plus a local presenter selected the local chapter

*** If you are unable to attend in person, please save the date for our virtual Community Education Forum on November 2, 2019.

Click here to register for one or more of our sites today!

Can’t attend in person? Consider participating in:

At our Virtual CEF on November 2, 2019, join George Yohrling, Senior Director, Mission and Scientific Affairs, Huntington’s Disease Society of America, as we explore “Hope and Progress in the Huntington Disease Clinical Pipeline”. Find out how trials are going, what’s next, and how together, we can create a new future where HD is less of a problem for those affected.

Find a local Community Education Forum location near you:

Upcoming

British Columbia

Victoria

October 19
1:00 p.m. – 4:00 p.m.
Victoria Public Library- Central Branch, 735 Broughton Street

Alberta

Calgary

October 26
10:00 a.m. – 2:30 p.m.
CNIB Meeting Room, 10-11A Street NE
Plus! Local presentations from Dr. Sarna (neurologist) and Linda Maclaren (genetic counselor).

Saskatchewan

Regina

October 15
Sunrise Branch Library – Sandra Schmirler Leisure Centre, 3130E Woodhams Drive
Refreshment will be provided.

Saskatoon

November 19
6:00 p.m. Start
Edwards Centre, 334 4th Ave N

Manitoba

Brandon

September 30
5:00 p.m. – 7:30 p.m.
Brandon Public Library, 1-710 Rosser Ave., Brandon
Refreshment will be provided.

Winnipeg

September 26
7:00 p.m. – 9:30 p.m.
Society for Manitobans with Disabilities, 825 Sherbrook Street
Plus! Local presentation from Dr. Udow (neurologist)!
Refreshment will be provided.

Ontario

Barrie

November 9
1:00 p.m. – 4:00 p.m.
Roberta’s Place Retirement Home, 489 Essa Road, Barrie

Belleville

October 25
1:00 p.m. – 4:00 p.m.
Crossroads to Care, 470 Dundas Street, Unit 63,  Belleville
Refreshment will be provided.

Durham Region

October 5
11:00 a.m. – 2:30 p.m.
Clarington Central Secondary School, 200 Clarington Blvd, Bowmanville
Plus! Yvonne Heath will present ‘I Just Showed Up’, which received many accolades at HSC’s 2018 National Conference!

Kitchener/Waterloo

October 5
1:00 p.m. – 4:00 p.m.
Science Teaching Complex (STC), University of Waterloo
Plus! Dr. Dale Martin will be available to answer your trial-related questions, and to provide a tour of his HD lab, housed within the STC at the University of Waterloo.
Refreshment will be provided.

London

October 19
10:00 a.m. – 3:00 p.m.
Parkwood Hospital, Auditorium, 550 Wellington Road
Plus! Enjoy a local presentation from Jim Pollard on Hurry Up and Wait: Thinking about Thinking with HD.
Lunch will be provided.

Niagara  (St. Catharines)

November 6
6:30 p.m. – 9:00 p.m.
St. Catharines Collegiate, 34 Catherine Street
Plus! Enjoy a local presentation from Dr. Tamara Maiuri on research, as well as an opportunity to learn about updates on the 2020 National Conference, to be held in Niagara Falls.
Refreshment will be provided.

Ottawa

October 19
12:00 p.m. – 4:00 p.m.
Royal Ottawa Auditorium, 1145 Carling Avenue
Plus! Enjoy a local presentation from Dr. Tiago Mestre about the Roche trial.

Timmins

September 25
7:00 p.m. – 9:00 p.m.
Golden Manor (Auditorium), 481 Melrose Blvd, Timmins
Plus! Enjoy a local presentation from Linda Dagenais (physiotherapist).
Refreshment will be provided.

Toronto

October 19
10:00 a.m. – 4:00 p.m.
Runnymede Healthcare Centre, 625 Runnymede Road
Plus! Enjoy a local presentation from Yvonne Heath, as well as a presentation on living well with HD from Natalie Marnica.

Atlantic Canada

St. John’s, Newfoundland

September 26
6:30 p.m. – 8:30 p.m.
Admiralty House Communications Museum, 365 Old Placentia Road, Mount Pearl
Plus! Enjoy a local presentation from Dr. Squarey.
Refreshment will be provided.

Click here to register for one or more of our sites today!
Is your site not listed? Contact us to express interest in attending if a site near you opens, or to offer to host a CEF in your area – events@huntingtonsociety.ca or 1-800-998-7398.

 

Completed

British Columbia

Vancouver

May 4
1:00 p.m. – 4:00 p.m.
Room 2108, Centre for Molecular Medicine and Therapeutics (CMMT), 950 W 28th Avenue

Alberta

Edmonton

April 13
10:30 a.m. – 2:30 p.m.
Buchanan Centre, 11209 86 Street NW

Grand Prairie

May 2
6:30 p.m. – 9:30 p.m.
Redwood Inn & Suites, 8117-99 Street, Clairmont

Ontario

Mississauga

June 8
1:30 p.m. – 4:30 p.m.
Alzheimer Society of Peel, 60 Briarwood Avenue

Atlantic Canada

Fredericton, New Brunswick

June 8
1:45 p.m. – 4:15 p.m.
Stepping Stone Senior Center, 15 Saunders Street, Fredericton

Quispamsis, New Brunswick

May 25
11:00 a.m. – 2:45 p.m.
Kennebecasis Public Library, 1 Landing Court

Conception Bay North, Newfoundland

June 8
11:00 a.m. – 3:00 p.m.
Community Room, Pte. Josiah Squibb Memorial Pavilion,  3-6 Earles Lane, Carbonear


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