I recently had the pleasure of attending my first ever Young People Affected by Huntington disease (YPAHD) Day in Kelowna,
About Huntington disease
What is Huntington disease?
Huntington disease (HD) is an inherited brain disorder. Each child of a parent with HD has a 50% chance of inheriting the disease. HD causes cells in parts of the brain to die. As the brain cells die, a person with HD becomes less able to control movements, recall events, make decisions and control emotions. The disease leads to incapacitation and, eventually, death.
Family is at the heart of our community
At the Huntington Society of Canada (HSC), we understand what you’re going through, whether you have the disease yourself, are caring for someone with HD , are gene positive or are at-risk of inheriting HD. We are a not-for-profit charitable organization which raises funds to deliver counselling and other support services to individuals and families living with Huntington disease (HD). The Society works with health and social services professionals to enable them to better serve people living with HD. We also fund medical research leading to treatments that will delay or stop the progression of the disease.
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