Saturday, October 14th, 2017
2017 Huntington Society of Canada National Symposium.
The National Symposium is an opportunity to gather with the local HD community in your area and learn about the latest in Huntington disease research.
The National Symposium is hosted by volunteers at multiple sites across Canada every two years. Presentations are then live-streamed across Canada, allowing those at Symposium locations to ask questions of presenters in real time. These locations often offer additional programming to facilitate networking with other HD families, healthcare professionals and local HSC staff. Presentations are also available to view from the comfort of your own home for those unable to travel to a Symposium location.
Presentation One: The Silver Lining: Learning from Unsuccessful HD Clinical Trials
Join researcher, Dr. Tamara Maiuri from McMaster University, to learn about the results of recent HD Clinical trials including Amaryllis, OpenHeart, Premordien and Pride. Together we will understand why these trials were stopped, but more importantly, what researchers learned that will continue to guide us in the future for treatments of Huntington disease.
Presentation Two: What’s Next? Clinical Trials in HD throughout Canada
Our panel of researchers, including Dr. Mark Guttman from Centre for Movement Disorders, Toronto, Dr. Blair Leavitt from the University of British Columbia, and Dr. Oksana Suchowersky of the University of Alberta will each share the latest news on their research and upcoming clinical trials, including HD-Clarity, Huntingtin Lowering, and GM-1. Moderated by HSC CEO Bev Heim-Myers, this presentation is sure to lead you to Believe!
Dr. Mark Guttman Q & A:
What is the process for patients who are seen at different clinics (eg North York General) but would like to be a part of the Precision-HD trial?
Discussions are in place to determine a process. I would like to see potential patients clinically to get to know them before offering participation in the study, otherwise they need to be referred by their doctor with supporting documents sent to my office.
Has anyone been enrolled for the WAVE trial yet?
The first patient has not yet been dosed. Hopefully within a few weeks the first dose will be received.
Vancouver, British Columbia
Victoria, British Columbia
Kelowna, British Columbia
Thunder Bay, Ontario – October 18, 2017
Halifax, Nova Scotia
Quispamsis, New Brunswick
St. John’s, Newfoundland