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May Awareness 2017



Help us light up the world!

Together let’s raise the visibility of Juvenile HD and HD.


Thanks to local and national volunteers our LightItUp4HD campaign is gaining lots of attention. With the encouragement from volunteers across Canada (and even the globe!) we are expanding #LightItUp4HD. Let’s light up the world in purple and blue, for Juvenile Huntington disease (JHD) and Huntington disease (HD), throughout the month of May 2017! The more days we can light up, the more awareness we will bring to HD. Our goal is to #LightItUp4HD, somewhere in the world, each day of the month. Rather than one day, we are looking to celebrate May Awareness each and every day of May 2017. Want to see how we did last year? Check out this video from 2016′s #LightItUp4HD. If you would like to know more about the site involved, please click on it and you will be directed to their webpage.

Scroll down for our information package, templates for contacting sites and more about how you can get a site to participate.

Don’t miss a single post, see what everyone’s posting with our official hashtag.
For Facebook posts, click here. For Twitter posts, click here.


CANADA – Confirmed Locations

Canada Flag


British Columbia


Newfoundland and Labrador

  • Pasadena Place in Pasadena – May 12 – 15


Prince Edward Island



AUSTRALIA - Sites to be confirmed


GERMANY – Confirmed


IRELAND - Sites to be confirmed

Ireland Flag  


Scotland Flag

SPAIN - Sites to be confirmed


UNITED STATES OF AMERICA - Sites to be confirmed


Join in the fun and let’s show the world what our global community can do!

Join this growing movement! Choose a building, monument or statue in your area.

Step 1: Email with your suggestion. Please see the list below of the buildings, monuments or statues that volunteers are currently contacting. Email us to with the name of the site you want to contact. We will confirm and add your site to the list below. On to step two!

Step 2: Contact the building, monument or statue.

a) Find the contact information on their website.

b) Call or email them directly and ask what the process is to light up the building, monument or statue. If they need more information about Light It Up 4 HD, you can provide them with this info package. Other materials include photo 1 and photo 2, as well as general HD materials like this poster and this brochure.

c) Once you know the process, use this template, complete your information, and email it to the site.

Step 3: Wait for confirmation. It may take 4 – 6 weeks; if you don’t hear back, don’t be shy! Go ahead and contact them again.

Step 4: Official confirmation. Some buildings, monuments or statues want official confirmation from HSC. That’s no problem just forward the request to and we will confirm you are working on our behalf. Please note: Most sites will need 6 – 8 months to prepare so, let’s start now!

We support those facing huntington disease
 Latest Blog
Giving Back

March 14, 2017 Jim Wiswell learned he had the HD gene in 1995. It was tough news to come to
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