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May is Huntington Disease Awareness Month




Help us light up the world!

Together let’s raise the visibility of Juvenile HD and HD.


Thanks to local and national volunteers our LightItUp4HD campaign is gaining lots of attention. With the encouragement from volunteers across Canada (and even the globe!) we are expanding #LightItUp4HD. Let’s light up the world in purple and blue, for Juvenile Huntington disease (JHD) and Huntington disease (HD), throughout the month of May 2017! The more days we can light up, the more awareness we will bring to HD. Our goal is to #LightItUp4HD, somewhere in the world, each day of the month. Rather than one day, we are looking to celebrate May Awareness each and every day of May 2017. Want to see how we did last year? Check out this video from 2016’s #LightItUp4HD. If you would like to know more about the site involved, please click on it and you will be directed to their webpage.

Scroll down for our information package, templates for contacting sites and more about how you can get a site to participate.

Throughout the month, we’ll be highlighting our volunteers over on our blog. Seeing the impact the HD community makes on a daily basis always serves as a dose of inspiration for us. Be inspired with us. Click here to see how these volunteers are spreading Huntington disease awareness.

Don’t know enough about Huntington disease? Our PSA Campaign is a great way to get acquainted. Click here to see our radio/TV ads and to see if they’re airing on a channel near you.

Seen blue and purple ribbon pins floating around? Those pins were hand-crafted from our very own Barb Marshall! Learn more about Barb and her Ribbons of Hope by clicking here.

Don’t miss a single post, see what everyone’s posting with our official hashtag.
For Facebook posts, click here. For Twitter posts, click here.


CANADA – Confirmed Locations

Canada Flag


British Columbia


  • RBC Convention Centre – May 12
  • The Forks in Winnipeg –  May 22
  • The Merchants Hotel in Selkirk – May 26

Newfoundland and Labrador

  • Pasadena Place in Pasadena – May 12 – 15

New Brunswick

Nova Scotia


  • CN Tower in Toronto – May 1 (a light show will run for 8 minutes at the top of every hour, starting at sunset)
  • Big Nickel in Sudbury – Early May
  • London Life Insurance Building in London – May 8-14
  • London Convention Centre – May 8-14
  • London City Hall – May 8-14
  • MacIntyre Headframe in Timmins – May 8-31
  • City of Welland Bridge – May 18
  • Niagara Falls – May 18 (Falls will be illuminated Purple & Blue at 10:00 p.m. for a fifteen (15) minute duration. Please note that illumination times are approximate and subject to change according to light conditions.)
  • THEMUSEUM in Kitchener – May 19 – 22
  • 3D Toronto Sign in Toronto – May 24(This lighting pattern will be in rotation with the Sign’s original multi-coloured pattern, from approximately 9 am on May 24 until 9 am on May 25.Please keep in mind that although the Sign stays on throughout the day, the letters’ LEDs are not visible when hit with direct, bright sunlight. Thus, the L.E.D. colours are only visible from dusk until dawn, unless it is overcast. The 3D Leaf will NOT be included in the 3D Toronto Sign Commemorative Lighting Program. During Commemorative Lightings, the maple leaf will appear in either a neutral white, or red shade.)
  • Kitchener Public Library – May 27
  • Caesars Windsor – May 30

Prince Edward Island



AUSTRALIA – Sites to be confirmed

  • Melbourne Town Hall – May 21-22


  • Municipality Buildings of Nicosia – May 15-19
  • Municipality Buildings of Strovolos – May 15-19
  • Cyprus Institute of Neurology and Genetics – May 14-19
  • University of Cyprus, The A.G. Leventis Building, Nicosia – May 15-19
  • Municipality Building of Derinia, Ammochostos – May 15-21
  • Municipality Building of Ayia Napa, Ammochostos District – May 15-21
  • Cyprus Museum in Nicosia – May 15 – 19
  • Limassol Medieval Castle – May 15 – 19
  • Kolossi Medieval Castle – May 15 – 19
  • Paphos Medieval Castle – May 15 – 19
  • Larnaka Medieval Castle – May 15 – 19
  • Sotira Municipalty – May 15 – 19

  • Paralimni Municipalty – May 15 – 19
  • Limassol Municipality – May 19


  • George’s Dock Building (Liverpool, Merseyside) – May 15-21
  • Various buildings within the Diocese of Cheshire – May 15-21
  • St. Philip’s Cathedral (Birmingham, West Midlands) – May 15-21
  • Smeatons Tower (Plymouth, Devon) – May 15-19
  • Mount Batten Tower (Plymouth, Devon) – May 15-19
  • First Direct Arena (Leeds, Yorkshire) – May 16
  • Emirates Spinnaker Tower (Portsmouth, Hampshire) – May 16
  • Blackpool Tower (Blackpool, Lancashire) – May 16
  • Liverpool Engineering Building (Liverpool, Merseyside) – May 17
  • Guildhall Square (Southampton, Hampshire) – May 18
  • Mayflower Theatre, Southampton – May 18
  • Gateshead Millennium Bridge – Tyne & Wear – May 19

*HDAUK will be lighting up in pink and green.




Ireland Flag


Scotland Flag


  • Cloister Monument to Fonseca, USC, Santiago de Compostela – May 1 – 31
  • Puerta de Zamora Fountain in Salamanca – May 5
  • Tower of Hercules, A Coruña – May 5
  • IOS Dental Institute in Cáceres – May 5
  • Townhall of Santiago De Compostela in A Coruña – May 5
  • Townhall of Móstoles in Madrid – May 5
  • Townhall of Santa Marta de Tormes – May 5
  • Cibeles Fountain, Madrid – May 5
  • Hotel Córdoba Center in Córdoba – May 5
  • House of Culture of Sierra de Fuentes, Cáceres, in Extremadura – May 5
  • City Council of Palma de Mallorca in Islas Baleares  – May 5
  • Plaza of Don Juan of Austria in Seville – May 12
  • City Hall of Valencia in Valencia – May 17
  • Badalona City Hall in Barcelona – May 31


  •  University of Iowa Memorial Union in Iowa City, IA – May 1-5


  • Plas Heli in Pwllheli – Date TBC

Join in the fun and let’s show the world what our global community can do!

Join this growing movement! Choose a building, monument or statue in your area.

Step 1: Email with your suggestion. Please see the list below of the buildings, monuments or statues that volunteers are currently contacting. Email us to with the name of the site you want to contact. We will confirm and add your site to the list below. On to step two!

Step 2: Contact the building, monument or statue.

a) Find the contact information on their website.

b) Call or email them directly and ask what the process is to light up the building, monument or statue. If they need more information about Light It Up 4 HD, you can provide them with this info package. Other materials include photo 1 and photo 2, as well as general HD materials like this poster and this brochure.

c) Once you know the process, use this template, complete your information, and email it to the site.

Step 3: Wait for confirmation. It could take a couple of days or even up to 4 – 6 weeks; if you don’t hear back, don’t be shy! Go ahead and contact them again.

Step 4: Official confirmation. Some buildings, monuments or statues want official confirmation from HSC. That’s no problem just forward the request to and we will confirm you are working on our behalf. Please note: Most sites will need 6 – 8 months to prepare so, let’s start now!

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