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In the Know – November 2015

Volume 10, Issue 11

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NEWS

Brockville firefighters get creamed in support of Huntington disease fight
St. Lawrence News – November 7, 2015

Brockville firefighters took one cream pie in the face for Huntington disease on Thursday to support research, development and trial testing. Read the full story here.

Sudbury Huntington Society Chapter selling Amaryllis bulbs to raise funds
CBC News – November 2, 2015

The Sudbury Chapter of the Huntington Society is selling amaryllis bulbs this month as part of a nationwide initiative to raise money for people dealing with the debilitating disease. To read the full story and to listen to the radio interview, click here.

Last call for Amaryllis!

The 2015 Amaryllis campaign is nearing the finish line and thanks to our amazing Amaryllis sellers, Amaryllis sales are not slowing down.  We have almost reached our goal with less than 7% of our 2015 stock remaining. Let’s sell out this year!

If you need to place your order, or if you need more Amaryllis, please don’t wait.  You can order by clicking here, emailing us at amaryllis@huntingtonsociety.ca or by calling 1-800-998-7398.

Thank you for your tremendous and continuing support and all you are doing to Inspire Hope!

Photographer captures the lives of others living with Huntington disease
CityNews – November 13, 2015

Videographer Audra Brown speaks with a photographer about how being diagnosed with Huntington’s Disease made her turn the camera on others with the disease. Click here to view the video.

RESEARCH NEWS

Huntingtin lowering/Gene Silencing Trial

Human trials begin on gene therapy for Huntington disease
Vancouver Sun – October 21, 2015

Experimental drug first to target cause of brain-wasting disease.

A handful of British Columbians are helping test a new “gene silencing” drug designed to halt production of a toxic protein that causes brain wasting in Huntington Disease. To read more, click here.

Liftoff: First humans treated with gene silencing drugs for HD!
HDBuzz – October 22, 2015

Today brings news that the first Huntington disease patients have been successfully dosed with gene silencing drugs targeting the HD gene. These brave volunteers are the first HD patients to ever be treated with drugs designed to attack HD at its root cause, a treatment approach with huge potential. What about this news has us so excited? Click here to read more.

Landmark Huntington’s trial starts
BBC News – October 19, 2015

The first drug that can potentially correct the underlying defect that causes Huntington disease has been taken by patients in a clinical trial.

Doctors at University College London, which is leading the study, said it was an important moment in tackling the incurable condition. To read the full article, click here.

Mapping the anatomy of HD: a whole-brain history
HDBuzz – November 4, 2015

Though many scientists have focused on damage to a part of the brain called the striatum as a source of HD symptoms, this is a narrow picture of what changes in the brain during HD. A new book provides a summary of many research techniques over a hundred years that have led to a more complete image of HD as a disease affecting the entire brain. To read more, click here.

Monthly bulletin for November
Enroll HD – November

Check out the latest updates from Enroll HD here.

HSC STAFF CHANGES

Please help us welcome our new National Events & Chapter Development Coordinator:

Annie Vanexem, National Events & Chapter Development Coordinator
Annie assists in the fundraising, awareness, and event management through the coordinated efforts of staff and volunteer resources. She works out of the Kitchener office and can be reached at 1-800-998-7398 or at avanexem@huntingtonsociety.ca. Feel free to send Annie an email to welcome her to the team.

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