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In the Know – December 2019

VOLUME 14, ISSUE 12

RESEARCH NEWS

Experiments on Par Levels in HD Cells and Hutingtin Par Binding

(Ray Truant Laboratory, McMaster University: Dec. 2, 2019)

Tamara Maiuri investigates why the Huntington disease protein huntingtin binds poly-ADP ribose. 

Latest EnrollHD Newsletter Now Available!

(CHDI Foundation: Nov. 20, 2019)

The latest issue of Enroll! lands at an especially promising time in HD research. Everywhere you look, from the lab bench to the clinical exam room, the excitement about the latest scientific advances is palpable.

The Right Mouse Model is Crucial for Huntington Disease Drug Development

(IOS Press: December 11, 2019)

Scientists evaluated mouse models used for developing new treatments for mood disorders associated with Huntington’s disease and recommend which are most relevant and have greater potential for success. They report their results in the Journal of Huntington’s Disease.

U of A, Biotech Company Team Up to Study Whether Medical Cannabis Could Treat Neurological Conditions

(Folio: December 3, 2019)

U of A and Atlas Biotechnologies to explore use of medical cannabis for treating MS, Alzheimer’s and Huntington’s diseases.

Timmins Family Affected by HD Speaks to CTV Northern Ontario to Raise Awareness

(CTV News NOrthern Ontario: Nov. 21, 2019)

**audio required**

Watch:  Lynn Walker of Timmins, ON is working hard to raise awareness and money for HD research and support. Sergio Arangio reports.

HSC Clinical Fellowship Program Accepting Applications Until Dec. 31, 2019

(HSC Website, Oct. 1, 2019)

HSC is pleased to offer the Clinical Fellowship program as a strategic initiative to encourage promising young clinicians to enter into clinical training in Huntington’s disease (HD). This fellowship of $60,000 will fund a one-year clinical training program. The purpose of this post-residency training is to create expertise in the diagnosis and management of HD. Clinical training is the largest component of this hands-on program (at least 80 per cent) but could include an element of research. However, this application will be evaluated solely on the clinical component. The HSC Fellowship will be supported through a generous grant from Hoffmann-La Roche (Roche Canada).

SUPPORT AND PROFILES

Haig Teacher Recognized for Her Volunteer Work

(Weyburn Review: Nov. 20, 2019)

Lisa Pollock lives in Weyburn, SK with her husband and daughter, and as her family has been affected by Huntington’s, she has been a volunteer to help make a difference for those who live with this debilitating disease.

HSC EVENTS

Tickets Now on Sale for Toronto Sports Getaway Raffle!

Support the Huntington Society of Canada (HSC) by participating in this year’s Sports Getaway Raffle and help raise money for family services and research towards a cure. Enter to win one of our amazing price packages for a fun weekend getaway in Toronto! Each prize is valued over $2,000!

Save the Date!  HSC National Conference

We are looking forward to the next National Conference in 2020 in Niagara Falls, ON! Check back often as more details are confirmed and look for our snappy new conference logo on future communications!

2019 YPAHD Days

Young People Affected by Huntington Disease (YPAHD) Day is a one-day conference that brings youth together at three sites across the country to help them connect with their peers. The Huntington Society of Canada thanks our 2019 YPAHD Day Sponsors – TD Securities, SickKids Foundation and Kindred Homecare.

HOW YOU CAN HELP

2019 Amaryllis Campaign Another Success!

Thank you for joining hands with our many supporters across Canada in inspiring hope for families impacted by Huntington disease.

Because of your invaluable dedication to the cause, all bulbs have been sold and we’re in the process of tabulating the total amount raised. You are funding world class research, you are helping to accelerate clinical trials, you are supporting families and you are impacting youth. Thank YOU!

Thank you for your continuing support and all you are doing to help us Inspire Hope!

Champion of Hope

Did you know that a donation of $30/month enhances direct support services (including counseling, research and recreational programs) for someone with HD for a year? Click here for more information on how to become a monthly donor today!

A Legacy of Strength, Courage and Grace 

You can purchase a beautifully designed t-shirt in memory of Victoria St. Amand. The t-shirts are being promoted to continue Vicki’s legacy of raising funds for HD research and services. The t-shirt will be mailed to you for a donation of $40, which includes shipping.

You can make a donation and order online by clicking here.


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