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In The Know – February 2016

Volume 11, Issue 2



Genetic Non-Discrimination Bill: Second Reading
Debate of the Senate, Parliament of Canada, January 27, 2016

On January 27, 2016, Senator James Cowan spoke to Bill S-201, An Act to prohibit and prevent genetic discrimination, in the Senate. To view the Bill, click here.

HD500 to Raise Funds for Huntington disease
The Selkirk Record, January 28, 2016

The Progressive Waste Solutions HD500 2-Day Snowmobile Ride is coming up on February 26 and 27, 2016 and the event in Manitoba will be raising funds for the local HSC chapter, read the full article about it in the digital version of The Selkirk Record here.

The Little Things that are Really Big: Care-giving in Families with Huntington disease
At Risk for Huntington’s Disease Blog, February 8, 2016

As a member of a Huntington disease family, Gene Veritas has become deeply familiar with the common yet often unheralded human practice of care-giving. To read about his experience, click here.

January 2016

Find the latest HD news covered by HDYO, a group of young volunteers who give their time and energy to ensure the latest news in HD is understandable for young people and families in the HD community.
To see their latest news update, click here.

Amaryllis Photo Festival – Congratulations Marilyn!

Hope is definitely in full bloom thanks to all who supported the Amaryllis campaign this year!  Congratulations to Marilyn, whose photo of a beautiful Amaryllis arrangement put together for Lorraine, received the most likes as part of the Amaryllis Photo Festival.  You can view her winning photo here and all the Amaryllis Photo Festival nominees here. Check out for more details about the upcoming campaign.


Harnessing the Power of Viruses to Treat Huntington Disease
HDBuzz – February 3, 2016

New therapies for disorders like Huntington disease are on the way, but getting the drugs to enter brain cells can be a major challenge. A group of scientists have redesigned and tested a harmless virus that can efficiently deliver a ‘gene silencing’ message throughout the brain in mice, much further than naturally occurring viruses can reach.
To read more, click here.

Monthly Bulletin for January
Enroll-HD, January 2016

Check out the latest updates from Enroll HD here.

HSC Staff Changes

After more than 8 years, first as Coordinator Chapter Development and then National Manager of Chapter Development,  Devin Bonner is moving on to a new adventure. Devin has accepted an Account Manager position with Blue North, a company that provides services to not-for-profit organizations. Please join us in wishing him all the best as he embarks on this new challenge.

As of February 15, 2016, we are pleased to announce that Annie Vanexem will be filling the position of National Manager of Chapter Development. Please join us in congratulating Annie on this new opportunity.  She can be reached at 1-800-998-7398 or at

ITK Footer - December 2015


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