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In The Know – September 2015

Volume 10, Issue 9

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* ITK has a new format! In The Know will now be hosted on our website to help increase it’s compatibility on your tablet and smart phones. Now you can access ITK easily from any device.

NEWS

Huntington disease go-kart event raises record amount for research, support
The Windsor Star – September 13, 2015

More than 100 residents helped raise $16,300 to help battle Huntington’s Disease at Sunday’s Huntington’s Indy Go-Kart Challenge at the Zap Zone Fun Centre. See the full story and the photos here.

Huntington disease won’t stop local family
The Windsor Star – September 7, 2015

Joanne Bateman has spent the last decade waiting for the proverbial “other shoe to drop,” but she won’t let the possibility of Huntington disease finally manifesting itself in her body to dampen her outlook. The read the full story, click here.

DeKoning family mark 60 years in butcher business
Port Dover Maple Leaf – August 26, 2015

MURRY and Rita DeKoning are owner operators of Hank DeKoning Limited the popular retail butcher shop and restaurant on Highway 6 north of Port Dover. All donations made during the two days were directed to research at the Huntington Society of Canada. To read the full story of the DeKoning family, click here.

Fundraiser sheds light on Huntingon disease locally
The Wiarton Echo – August 11, 2015

Sauble Beach Resort Camp was abuzz with the sounds of live music a BBQ and talk about supporting those affected by Huntington disease. The event was held to raise awareness about the disease as there is very little local support for those affected. Read the full story here.

Amaryllis sales are blossoming…

Thanks to our amazing group of dedicated amaryllis volunteers and purchasers, this year’s crop is already 75% sold out!  Thank you to all who have placed your orders so early.

If you haven’t had a chance to order yet, please do not miss out!  Together we have many great reasons to inspire others to remember that each and every Amaryllis we sell holds the promise of a world free from HD.  And, at over 75% sold out, we want to ensure you have Amaryllis this fall. Order today at www.inspirehope.ca or, if you prefer, please call HSC directly at 1-800-998-7398 or email us at amaryllis@huntingtonsociety.ca.

YPAHD Member’s video goes viral

Young People Affected by Huntington Disease’s (YPAHD) own Valerie Mallock has created a viral video with over 73,000 views and climbing! Valerie was a HSC youth rep at the HDSA conference in Texas this summer. Way to go Valerie! To watch the video, click here.

RESEARCH NEWS

DNA Repair Genes May Determine When Huntington’s Symptoms Begin
GEN News – August 10

A research team that searched the chromosomes of more than 4,000 Huntington’s disease patients reports that they found that DNA repair genes may determine when the neurological symptoms begin. The scientists believe the results may provide a guide for discovering new treatments for Huntington’s disease and a roadmap for studying other neurological disorders. To read more, click here.

Huntington disease prevention breakthrough? An interview with Professor Lesley Jones
News Medical – September 2, 2015

The main aim of this research was to see whether there were variants in the DNA that would highlight genes and molecular pathways that might cause the disease to manifest in people. In other words, not to use models of any sort, but to look at people themselves with the disease to see if we could find out what changed the disease in those people. To read the full article, click here.

New tool to measure outcomes in Huntington disease clinical trials
HDBuzz – September 3, 2015

When patients participate in clinical trials, there needs to be some type of readout to determine whether the new treatment worked. It’s important to know two key things: What to measure and how to measure it. In the case of HD, these obstacles have vexed scientists and doctors for years. The latest research comes up with a clever new approach to overcome both challenges in a new way. Read the full article click here.

Enroll-HD Monthley Bulletin
August 2015

The August 2015 updates bulletin outlines the latest recruitment into Enroll-HD. Click here to review the bulletin.

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