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In the Know – December 2015

Volume 10, Issue 12



Bill S-201: An Act to prohibit and prevent genetic discrimination
December 8, 2015

Senator Cowan tabled this bill this week in the Senate and he will discuss it in the new year.  Conveniently this was the first bill tabled in the Senate this session so the number remains the same ie: Bill S 201. To view a copy of  the full bill, click here.

Gene editing of sperm and eggs clinically irresponsible, scientists say
CBC News – December 3, 2015

Scientists have reached a consensus on the boundaries for using a powerful gene-editing tool, saying it would be irresponsible to clinically alter our DNA in a way that’s passed on to future generations. Read the full story here.

Amaryllis is SOLD OUT!

The 2015 Amaryllis campaign has been a wonderful success, thanks to our amazing Amaryllis sellers! We have reached our goal, raising over $115,000 this year! We can’t wait to see what next year’s campaign brings.

We would love to see photos of you (or your cats and dogs) with your blooming Amaryllis! Send them to us at or post them on social media with the hashtag #hscamaryllis.

Thank you for your tremendous and continuing support and all you are doing to Inspire Hope!


A multiple sclerosis drug that works for Huntington disease: the real deal or too good to be true?
HDBuzz – November 24, 2015

Thinking problems in Huntington’s disease take a huge toll from early in the disease. Now, new work suggests that a drug already approved by the FDA to treat another brain disease – multiple sclerosis – may stave off these problems in HD mice. Could these results be real, or are they too good to be true? To read more, click here.

Through the eyes of a friend: changes in mood and behaviour in early HD
HDBuzz – December 2, 2015

The family and friends of individuals with HD often tell doctors that they began to notice changes in behavior long before a diagnosis was made. To better understand these early signs, researchers analyzed a psychological questionnaire filled out yearly for a decade by thousands of HD mutation carriers and their companions. The companions were more likely to perceive worsening symptoms over time. Click here to read more.

Monthly bulletin for December
Enroll HD – December 2015

Check out the latest updates from Enroll HD here.

ITK Footer - December 2015


We support those facing huntington disease
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