2020 Postcard from Palm Springs
Highlights from the 2020 CHDI HD Therapeutics Conference are now here! This year’s Postcard covers HTT-lowering therapeutics, including an
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Ontario Support Groups
Registration information for clients of HSC:
- For all groups, please register here: https://contactme.cloud/form/huntingtonsociety
- To register for a specific group, please select it from the drop-down box titled “reason”
- Groups are listed in alphabetical order by name
- Links for virtual meetings or specific address details will be sent following registration
- If there is no registration deadline listed, you can register anytime!
- If you’ve attended a group before and the facilitator knows you’re returning, there is no need to register again. We are expecting you!
Click here for a description of the different types of groups.
1) East Central Ontario Persons Living with HD Support Group
- Second Wednesday of every month, 3 p.m. to 4 p.m. ET
- September to June
- Facilitated by Stephen Martyn (MSW, RSW)
Delivery: Virtual
Who is this for? Persons Living with HD
2) East Central Ontario Carers Support Group
- First Wednesday of every month, 7 p.m. to 8 p.m. ET
- September to June
- Facilitated by Stephen Martyn (MSW, RSW)
Delivery: Virtual
Who is this for? Carers of persons living with HD
3) Ottawa and Area Carers Support Group (Ottawa, Prescott-Russell, Leeds Grenville and Renfrew County)
- Third Wednesday of the month, 7:00 p.m. to 8:30 p.m. ET
- September to July
- Facilitated by Kim McMullin, (B.A. Psych, BSW, RSW) and Muna Young (BSW, RSW)
Delivery: Virtual
Who is this for: Anyone who cares for someone with HD. Being a caregiver does not necessarily mean living with someone full-time. Caregiving is a role that changes over time. As HD is a multi-generational disease, caregivers might find themselves supporting various members of their family at different stages of the disease (at-risk, pre-symptomatic, symptomatic, and end-of-life). All are welcome
4) Belleville and Kingston Area Carers Support Group (Frontenac, Hastings, Lennox Addington and Prince Edward County)
- Second Tuesday of every month, 1:00 p.m. to 2:30 p.m. ET
- September to July
- Facilitated by Kim McMullin, (B.A. Psych, BSW, RSW)
Delivery: Virtual
Who is this for: Anyone who cares for someone with HD. Being a caregiver does not necessarily mean living with someone full-time. Caregiving is a role that changes over time. As HD is a multi-generational disease, caregivers might find themselves supporting various members of their family at different stages of the disease (at-risk, pre-symptomatic, symptomatic, and end-of-life). All are welcome
5) Ontario Carers Support Group
- Thursdays, monthly from 12:30 p.m. to 2 p.m. ET
- October 16, November 13, December 11, January 15, February 12, March 12 (tentative), April 16, May 14, June 18
- October to June
- Facilitated by Rozi Andrejas (MSW, RSW)
Delivery: Virtual
Who is this for? Carers of people living with HD in Ontario
6) Southwestern Ontario Carers Support Group
- Third Monday of every month, 6:00 p.m. to 7:00 p.m. ET
- September to June
- Facilitated by Brooke Hurley (MSW, BA, RSW)
Delivery: Virtual
Who is this for? Caregivers in Southwestern Ontario
7) Northern Ontario HD Community Support Group
- Second Tuesday of every month, 6:30 p.m. to 7:30 p.m. ET
- October to June
- Facilitated by Sarah Lachance (M.A., RP)
Delivery: Virtual
Who is this for? HD Community – people at-risk, gene positive, or who have an HD diagnosis and their caregivers/family members
8) Thunder Bay HD Community Support Group
- 2-3 times per year – dates to TBC
- September – June
- Facilitated by Sarah Lachance (M.A., RP)
Delivery: In-Person
Who is this for: HD Community– people at-risk, gene positive, or who have an HD diagnosis and their caregivers/family members
9) Niagara Carers Support Group
- Once a month, 7:00 p.m. to 9:00 p.m. ET, on the following Thursdays:
- September 18
- October 16
- November 13
- December 11
- January 8, 2026
- February 5
- March 5
- April 2
- April 30
- May 28
- June 25
- Facilitated by: Muna Young (BSW, RSW)
Delivery: In-Person (St. Catharines)
Who is this for? Anyone who cares for someone with HD. Being a caregiver does not necessarily mean living with someone full-time. Caregiving is a role that changes over time. As HD is a multi-generational disease, caregivers might find themselves supporting various members of their family at different stages of the disease (at-risk, pre-symptomatic, symptomatic, and end-of-life). All are welcome
10) Hamilton/Halton HD Community Support Group
- Once a month – to be confirmed by the facilitator upon registration. 7:00 p.m. to 9:00 p.m. ET
- September to July
- Facilitated by: Muna Young (BSW, RSW)
Delivery: In-Person (Burlington)
Who is this for? HD Community and family – people at-risk, gene positive or who have an HD diagnosis and their caregivers/family members
11) Ontario Persons Living with HD Support Group – FULL
- Thursdays, monthly from 12:30 p.m. to 1:30 p.m. ET
- Oct. 23, Nov. 20, Dec. 18, Jan. 22, Feb. 19, Mar. 19, Apr. 23, May 21
- October to May
- Deadline to register is Sept. 5
- Facilitated by Rozi Andrejas (MSW, RSW) and Brooke Hurley (MSW, BA, RSW)
- This group is FULL
Delivery: Virtual
Who is this for? Persons with HD in the mild to moderate stage of HD progression who would like to learn more about HD and discuss strategies with a focus on living your best life with others who “get it”. Ontario residents only