National Support Groups

Registration information for clients of HSC:

To register for a specific group, please select it from the drop-down box titled “reason”
Groups are listed in alphabetical order by name
Links for virtual meetings or specific address details will be sent following registration
If there is no registration deadline listed, you can register anytime
If you’ve attended a group before and the facilitator knows you’re returning, there is no need to register again. We are expecting you!
If you have any technical difficulties with the contact form, please email slachance@huntingtonsociety.ca

1) National Youth Art Therapy Support Group - Full

Facilitated by: Winnie Diverlus (CYC-P, MACTE ME) and Jaclynn Phillips (MSW, RSW, BFA, ATDip)

Delivery: Virtual

Who Is This For: A monthly creative space for young adults (19–35) affected by HD where making art together becomes a way to explore identity, build resilience, and find community with people who just get it.

2) National At-Risk / Gene Positive Support Group

October 7, 2026
October 14, 2026
October 21, 2026
October 28, 2026

Facilitated by: Maryam Chamanifard (RSW) and Quinn Mykyte (BSW, RSW)

Delivery: Virtual

Who Is This For: People who are living at-risk or are gene positive for Huntington disease. Once this group is completed, we will offer an ongoing monthly social support group for the members. Discussions will focus on:

HSC, research, HD 101
Genetic testing and family planning
Lived experiences on navigating relationship, grief and coping
Building community and HSC supports

3) National Living Well Now Support Group: Group 1

October 6, 2026
October 13, 2026
October 20, 2026
October 27, 2026

Facilitated by: Muna Young (BSW, RSW) and Erin Stephen (BSW, RSW)

Delivery: Virtual

Who Is This For: Living Well Now is a closed 4 session group. The group will focus on living fully in the present, not “waiting for illness”. Discussions will focus on living with the uncertainty of HD, navigating relationships, wellness, and future planning. This group is for Gene-positive adults in midlife (35 and over). Once this group is completed, we will offer an ongoing monthly social support group for the members.

4) National Living Well Now Support Group: Group 2 - FULL

November 9, 2026
November 16, 2026
November 23, 2026
November 30, 2026

Facilitated by: Muna Young (BSW, RSW) and Erin Stephen (BSW, RSW)

Delivery: Virtual

5) National Male Carers Social Support Group

Facilitated by: Stephen Martyn (MSW, RSW)

Delivery: Virtual

Who Is This For: Men who care for or support a person living with Huntington disease who would like to connect socially

6) National Parent Support Group

Facilitated by: Maryam Chamani Fard (MSC, RSW) and Quinn Mykyte (BSW, RSW)

Delivery: Virtual

Who Is This For: Parents with children who are living with Huntington disease

7) Groupe MH national de soutien communautaire pour les proches aidants

ENGLISH TRANSLATION FOLLOWS