Highlights from the 2020 CHDI HD Therapeutics Conference are now here! This year’s Postcard covers HTT-lowering therapeutics, including an
The next session will begin in the fall (mid-late September or early October). Start date is dependent on the response we receive from interested participants.
About the Group
The at-risk/gene + support group will consist of eight sessions in a closed group format, held at a frequency determined by feedback from the group. Interested individuals can complete an intake form and meet with Corey Janke, national social worker for HSC, via telephone to do an initial assessment, discuss expectations for confidentiality, and group times/guidelines prior to the initial meeting. There will be about eight participants in the group to allow everyone to participate fully.
Benefits of the Group
Unlike other HSC support groups that address topics relevant to carers or people with Huntington disease (HD) symptoms, this group offers a forum to address different issues, including relationships, family planning and whether or not to get tested, to name a few. Past groups were memorable because participants really learned from each other, supporting and sharing.
If this sounds like a program that fits your needs and you are interested in participating in this exciting opportunity, or if you have any additional questions, please contact Corey Janke, national social worker, at firstname.lastname@example.org or by calling 519-672-6666.