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May 15 is International HD Awareness Day

The global Huntington’s Disease community is proud to announce May 15 as the International Huntington’s Disease Awareness Day, a special day for the global Huntington’s Disease (HD) community to unite together to raise awareness for Huntington’s Disease. The global Huntington’s Disease community is a big family brought together by HD.

As we continue to deal with the uncertain future brought by COVID-19, there is one thing that we know for certain – our fight against HD does not stop. We need every ounce of solidarity from everyone to tackle it together. In the face of adversity, as a global HD community, we stand together and continue our mission to provide families from all around the world with support.

We are in the fight of our lives. We are in it together. And we will come out of it stronger, together.

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International Huntington’s Disease Awareness Day is a project of the Argentinian Association for Huntington Patients, Chinese HD Association, European Huntington Association, Huntington Society of Canada, Huntington’s Disease Africa and the Huntington’s Disease Society of America.

Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Each child of a parent with HD has a 50/50 chance of inheriting the faulty gene that causes HD. Today, there are over 41,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. The symptoms of HD are often described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.

Click here for the PDF statement.


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