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Awareness for HD is Global! On May 15, International Huntington Disease Awareness Day, we stand with global organizations who share our mission to amplify education about Huntington disease (HD), raise funds for programs and research focused on the disease, and build community.

The challenge? HD is a rare disease. This International HD Awareness Day, have a conversation about Huntington disease with someone who is unfamiliar with HD. Watch this video for inspiration:


What is Huntington disease?

It would mean the world to us if you could use these points to spread our message about what HD is and how people can help.

  • HD is a genetic brain disorder with physical, mental and emotional symptoms. HD is often described as having Parkinson’s, schizophrenia and Alzheimer’s all at the same time. There is no known cure. Each child of a parent with HD has a 50% chance of having the gene mutation that leads to the progression of HD.
  • When HD appears in someone under the age of 20, the illness is recognized as Juvenile Huntington disease.
  • One in every 7,000 Canadians has HD and approximately one in every 5,500 is at-risk for developing the disease. Many more are touched by HD as a caregiver, family member, or friend.


How can people help?

Help for Huntington disease can take many forms. Raising awareness is key – please share this message or our social media posts and invite others to do the same. If you are creating your own social media posts, please use #askmeaboutHD – that will help us to find and share your messages of awareness, reaching more people. Raising funds is also critical to our mission to offer family support services and fund research.


Huntington disease in real life: click on a profile below to read their HD story.


Light It Up 4 HD: International Sites

Just look at some of these amazing photos of international buildings and structures lighting up in blue for Huntington disease and purple for Juvenile HD! For all of the sites across the world lighting up, click here: https://www.huntingtonsociety.ca/2022-light-it-up-4-hd/


At the Huntington Society of Canada’s (HSC), we are so inspired by the spirit of the Huntington disease (HD) community. We hope to one day live in a world free from HD. Our goal is to increase the quality of life of people living with HD by delivering support services, raising awareness about HD and supporting HD research. Thank you to everyone for donating and helping us to raise awareness of Huntington disease!

To learn more about Huntington disease, check out our fact sheets: https://www.huntingtonsociety.ca/hd-fact-sheets/

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