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In the Know – October 2019

VOLUME 14, ISSUE 10

RESEARCH NEWS

Former HMS Dean Martin Honored by Canadian Medical Hall of Fame

(Harvard Medical School News Release: Oct. 10, 2019)

Martin received his premedical and medical education at the University of Alberta, Edmonton, earning his MD in 1962. He completed a residency in neurology and a fellowship in neuropathology at Case Western Reserve University and received his PhD in anatomy from the University of Rochester. He then joined McGill University in Montreal where he became chair of the Department of Neurology and Neurosurgery, but soon joined the HMS faculty in 1978 as the Bullard Professor of Neurology, becoming chief of the neurology service at Massachusetts General Hospital. Martin’s legacy includes groundbreaking early work in the genetics of Huntington’s disease and Alzheimer’s disease and developing an NIH-sponsored Huntington’s disease research center at Massachussets General  Hospital.

HD COMMUNITY NEWS

Genetic Privacy Legislation Goes to the SCC 

(The Canadian Bar Association: Oct. 4, 2019)

Can Parliament’s criminal law power be used to protect genetic information?

HSC Clinical Fellowship Program Now Accepting Applications

(HSC Website, Oct. 1, 2019)

HSC is pleased to offer the Clinical Fellowship program as a strategic initiative to encourage promising young clinicians to enter into clinical training in Huntington’s disease (HD). This fellowship of $60,000 will fund a one-year clinical training program. The purpose of this post-residency training is to create expertise in the diagnosis and management of HD. Clinical training is the largest component of this hands-on program (at least 80 per cent) but could include an element of research. However, this application will be evaluated solely on the clinical component. The HSC Fellowship will be supported through a generous grant from Hoffmann-La Roche (Roche Canada).

Have You M.E.T. Huntington Disease?

(HSC Factsheet)

Huntington disease has three major areas of impact. This factsheet is a good resource for HD caregivers.

Safeguarding the Right to Vote for All Citizens, Regardless of Age

(Toronto Star, Oct. 13, 2019)

As our family, like so many others, talked about the election together this weekend, I began to think about the role played by Canadians — approximately 500,000 Canadians — with cognitive impairments in our most basic democratic tradition. How, I wondered, do individuals like my mother participate in our democracy and what supports are in place for them to do so?

SUPPORT AND PROFILES

HSC’s Amaryllis Campaign: Behind the Scenes

(HSC Blog: September 16, 2019)

Amaryllis plants produce showstopping, beautiful blooms at a time of year when blooming colour is scarce..

HSC EVENTS

Registration Now Open for YPAHD Days – Nov. 16, 2019

Young People Affected by Huntington disease (YPAHD) Day is a one-day conference in Calgary, Toronto or Halifax, designed specifically for youth affected by HD (14-35 years of age). Learn about genetic testing, family planning, caring for someone with HD, navigating relationships, think about event planning during the round table discussions and more…!

2019 Community Education Forums

The Huntington Society of Canada invites you to attend its annual Community Educational Forum for presentations on research and caregiving. Generously sponsored by Roche, Wave Life Sciences and uniQure.

Every other year, HSC provides a live forum wherein patients and carers can meet to learn about the most recent updates in HD, network with other patients and perhaps most importantly, have the opportunity to have their questions answered by leading professionals who specialize in HD.

For more information and to register for your local CEF, click here.

Can’t Attend a CEF in Person? Register for our Virtual CEF!

At our Virtual CEF on November 2, 2019, join George Yohrling, Senior Director, Mission and Scientific Affairs, Huntington’s Disease Society of America, as we explore “Hope and Progress in the Huntington Disease Clinical Pipeline”. Find out how trials are going, what’s next, and how together, we can create a new future where HD is less of a problem for those affected.

If you can’t attend a local CEF in person, our CEF Virtual Day will be held on November 2, 2019. More details to come!

COMMUNITY EVENTS

There are many events going on across Canada all summer to raise awareness and support for Huntington disease.  Click here and check back regularly to find out what is happening in your area!

HOW YOU CAN HELP

2019 Amaryllis Campaign

Have you purchased your Amaryllis yet for the 2019 Campaign? We plan to sell out of bulbs again this year and are encouraging people to get their orders in! If you have never sold Amaryllis before, and would like find out more about this rewarding opportunity to raise funds for HD while inspiring hope in people’s homes, visit www.huntingtonsociety.ca/amaryllis-campaign/.

To order your Amaryllis, or to reach out with any questions about the Amaryllis Campaign or how to become a seller, visit our website at www.inspirehope.ca, email us at amaryllis@huntingtonsociety.ca or call 1-800-998-7398. Orders can be made at any time, with delivery dates through to December 6, 2019.

Thank you for your continuing support and all you are doing to help us Inspire Hope!

Champion of Hope

Did you know that a donation of $30/month enhances direct support services (including counseling, research and recreational programs) for someone with HD for a year? Click here for more information on how to become a monthly donor today!

A Legacy of Strength, Courage and Grace 

You can purchase a beautifully designed t-shirt in memory of Victoria St. Amand. The t-shirts are being promoted to continue Vicki’s legacy of raising funds for HD research and services. The t-shirt will be mailed to you for a donation of $40, which includes shipping.

You can make a donation and order online by clicking here.


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