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In the Know – October 2018

VOLUME 13, ISSUE 10

 

 

RESEARCH NEWS

RG6042 (FORMERLY KNOWN AS IONIS-HTTRX) HUNTINGTIN-LOWERING TRIAL INFORMATION
ROCHE HUNTINGTIN-LOWERING UPDATE – SEPTEMBER 16, 2018

On September 16, 2018 at the European Huntington Disease Network conference, Roche presented an update on the development of the huntingtin-lowering therapy RG6042 and provided information on two clinical trials that they plan to start by the end of 2018. Click here to read the full update on our website.

ROCHE ANNOUNCES DETAILS OF ITS ‘PIVOTAL’ HUNTINGTIN-LOWERING STUDY
HDBUZZ – SEPTEMBER 17, 2018

It’s a time of huge developments in the field of huntingtin-lowering drugs, which aim to reduce production of the huntingtin protein that causes Huntington’s disease. At the European Huntington’s Disease Network (EHDN) meeting this past week, Roche announced firm details of the first ever pivotal study of a huntingtin-lowering drug – RG6042, which you might know better as Ionis-HTTRx. So what do we know about the trial? Click here to read the full article.

ROCHE SET TO START 2 CLINICAL STUDIES OF POTENTIAL HUNTINGTON’S THERAPY RG6042
HUNTINGTON’S DISEASE NEWS – SEPTEMBER 24, 2018

Two new clinical studies of Roche’s investigational therapy RG6042 for Huntington’s disease (HD) are planned to start by the end of 2018 and will begin enrolling participants by early 2019. Click here to read the full article.

KIDS SOMETIMES GET HUNTINGTON’S DISEASE TOO
HDBUZZ – OCTOBER 2, 2018

Juvenile-onset HD is really rare, but a new study has helped us understand what the symptoms are and how they change over time. This is really important and in time will help us work out whether huntingtin-lowering and other treatments work in kids. Click here to read the full article.

HSC NEWS

2018 HSC NATIONAL CONFERENCE – REGISTRATION CLOSING SOON

Have you registered to attend the 2018 HSC National Conference in Kelowna, BC this November? Registration closes on October 19! This year’s conference will feature world-class speakers addressing the topics of breaking research, current clinical trials, music therapy, animal therapy and so much more. Click here for more information and to register!

FAMILY SERVICES STAFF ANNOUNCEMENTS: HSC HIRES VANCOUVER FAMILY SERVICES WORKER

HSC is happy to announce the appointment of Natalie Cruz as the new Family Services Worker in the Vancouver area. Natalie will be working with Rhonda Romolock, the Resource Centre Director for the BC Resource Centre at UBC. Click here to read the full announcement.

HUNTINGTON SOCIETY HOLDS GOLF FUNDRAISER TO BRING AWARENESS TO PROGRESSIVE BRAIN DISORDER
GLOBAL NEWS – OCTOBER 3, 2018

The Peterborough Chapter of the Huntington Society of Canada held a 9 hole best ball golf tournament and dinner. President of the Peterborough Chapter, Heath Sterling, says they tried to open the fundraiser up to a larger audience, and bring awareness to the debilitating disease. Click here to watch the full interview.

AMARYLLIS

Our amaryllis sales are growing by leaps and bounds with over 75% of bulbs already sold thanks to our amazing volunteers! Click here to join this national campaign and inspire hope of a world free from HD by ordering your amaryllis.

CHAMPION OF HOPE

Did you know that with just $10/month you could provide educational materials and consultations for one year, to individuals providing care to those with Huntington disease? Click here to learn more about how your monthly support assists the HD community.

 

       

 


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