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In the Know – November 2019

VOLUME 14, ISSUE 11

RESEARCH NEWS

Could Molecular Handcuffs Lower the Protein that Causes Huntington’s Disease?

(HDBuzz.net: Nov. 12, 2019)

Researchers got surprisingly lucky when looking for drug molecules to pull mutant huntingtin protein into a cellular garbage disposal machine.

The Gene Editing Revolution is Already Here

(Time: Oct. 24, 2019)

Ever since the discovery of the structure of DNA in the 1950s, scientists have been dreaming about rewriting the code of life. What if we could correct genetic mutations that cause disease in order to radically improve human health?

HD COMMUNITY NEWS

Bev Heim-Myers Rejoins HSC as Interim CEO

(HSC Blog Post: Nov. 12, 2019)

Bev Heim-Myers has agreed to take on the role of HSC’s Interim-CEO as of Tuesday, November 12, 2019.

HSC Clinical Fellowship Program Now Accepting Applications

(HSC Website, Oct. 1, 2019)

HSC is pleased to offer the Clinical Fellowship program as a strategic initiative to encourage promising young clinicians to enter into clinical training in Huntington’s disease (HD). This fellowship of $60,000 will fund a one-year clinical training program. The purpose of this post-residency training is to create expertise in the diagnosis and management of HD. Clinical training is the largest component of this hands-on program (at least 80 per cent) but could include an element of research. However, this application will be evaluated solely on the clinical component. The HSC Fellowship will be supported through a generous grant from Hoffmann-La Roche (Roche Canada).

Youth Affected by Huntington Disease to Come Together Across Canada

(HSC Blog Post: Nov. 14, 2019)

On November 16, 2019, three simultaneous YPAHD Days will be held in Calgary, Toronto and Halifax. Youth will enjoy the chance to bond, be understood and share their experiences.

Supporting the Fight Against Huntington’s Disease

(Lethbridge Herald: Nov. 1, 2019)

The sale of amaryllis flowers helps support research into Huntington’s disease in an effort to find a treatment. Those who support the annual campaign by purchasing the flowers are thereby helping to provide hope for the individuals and their families who are affected by the disorder.

SUPPORT AND PROFILES

A Personal Decision: Testing for Huntington’s Disease 

(North York General Hospital, Patient Care: Nov. 16, 2019)

Staff and physicians in the Genetics Program at North York General Hospital (NYGH) provide comprehensive diagnostic, counselling and testing services to individuals and families facing the disease. The Pulse spoke with a patient and a genetic counsellor about their experiences at the clinic.

2019 NPD Award Recipients Include YPAHD Social Media Coordinator, Lisa Pollock!

(AFP Website: Nov. 13, 2019)

Lisa Pollock, HSC’s YPAHD Social Media Coordinator was recognized on November 12, 2019 by the Association of Fundraising Professionals (South Saskatchewan Chapter) at their National Philanthropy Day Awards. Lisa received the Outstanding Volunteer Philanthropist Award at their luncheon. Well done, Lisa!

GivingTuesday

GivingTuesday is a global day of giving that happens each year after Black Friday and Cyber Monday. It’s a time when Canadians, charities and businesses come together to celebrate giving and participate in activities that support charities, non-profits and the community. There is no “right” way to participate as long as it supports generosity and giving.
Donate, volunteer time, help a neighbour, or spread the word!

HSC EVENTS

Save the Date!  HSC National Conference

We are looking forward to the next National Conference in 2020 in Niagara Falls, ON! Check back often as more details are confirmed and look for our snappy new conference logo on future communications!

2019 Community Education Forums

With just one more to go, the Huntington Society of Canada again thanks our Community Education Forum Sponsors for 2019 – Roche, uniQure, Vaccinex and Wave Life Sciences.

HOW YOU CAN HELP

2019 Amaryllis Campaign

Have you purchased your Amaryllis yet for the 2019 Campaign? Amaryllis sales are well under way and we are busy filling all of the orders!  This is a reminder that all orders need to be received before the end of November.  Thank you for your strong support.

 

We plan to sell out of bulbs again this year and are encouraging people to get their orders in! If you have never sold Amaryllis before, and would like find out more about this rewarding opportunity to raise funds for HD while inspiring hope in people’s homes, visit www.huntingtonsociety.ca/amaryllis-campaign/.

To order your Amaryllis, or to reach out with any questions about the Amaryllis Campaign or how to become a seller, visit our website at www.inspirehope.ca, email us at amaryllis@huntingtonsociety.ca or call 1-800-998-7398. Orders can be made at any time, with delivery dates through to December 6, 2019.

Thank you for your continuing support and all you are doing to help us Inspire Hope!

Champion of Hope

Did you know that a donation of $30/month enhances direct support services (including counseling, research and recreational programs) for someone with HD for a year? Click here for more information on how to become a monthly donor today!

A Legacy of Strength, Courage and Grace 

You can purchase a beautifully designed t-shirt in memory of Victoria St. Amand. The t-shirts are being promoted to continue Vicki’s legacy of raising funds for HD research and services. The t-shirt will be mailed to you for a donation of $40, which includes shipping.

You can make a donation and order online by clicking here.


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