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In The Know – November 2017

Volume 12, Issue 11

 

HUNTINGTON SOCIETY OF CANADA’S CEO, BEV HEIM-MYERS, ANNOUNCES HER RETIREMENT FROM HSC

The Huntington disease community in Canada, and globally, has never been in a better position to realize the dream of a “world free from Huntington disease.” For over 7 years, Bev Heim-Myers has brought passion and purpose to HSC, leading us to this important point in our organization’s history. Click here to read the full announcement.

HSC NEWS

Living with Huntington disease
CTV News Atlantic – October 26, 2017

CTV News Atlantic sat down with Doug Mallock, Keely McCoy and New Brunswick Resource Centre Director, Marthe Gautreau, to discuss HD in Atlantic Canada. Click here for the full news video.

Canada’s ‘One Extra Push’ Campaign Aims to Raise Awareness of Huntington’s Disease
Huntington’s Disease News – November 7, 2017

The Huntington Society of Canada (HSC) and Ottawa-based social media company Shared have jointly launched the “One Extra Push” campaign to raise awareness about Huntington’s disease (HD) in Canada. Click here to read the full article. Click here to watch the videos.

Inside the O’Briens Movie

New York Times Bestseller book “Inside the O’Briens” by Lisa Genova is being made into a movie. Click here to see Genova’s Facebook post announcing the movie.

YPAHD Days 2017

We are closely approaching the 2017 YPAHD Days this Saturday, November 18 in Toronto, Moncton and Kelowna. If you are attending YPAHD Day, make sure to share your photos and use the hashtag #YPAHD2017 and the Snapchat filters at each location. Click here to see photos on the event day.

Amaryllis Month is Well Under Way

The 2017 Amaryllis Campaign is fast moving to the final leg of the campaign with less than 10% left to be sold. Don’t miss your opportunity to inspire hope with these beautiful orange sovereign amaryllis flowers. Click here to place your order today.

Champion of Hope

We are truly thankful to our Champion of Hope monthly donors who are creating a real difference and inspiring hope in the HD community. Our champions’ ongoing support is enabling breakthrough research and providing much needed services to individuals and families. Click here to be our Champion of Hope.

GENETIC FAIRNESS

Keep up to date on the latest developments in genetic fairness. Click here for the most recent information.

RESEARCH NEWS

A new way of thinking about trials to prevent Huntington’s disease
HD Buzz – October 27, 2017

A new analysis of clinical data from the TRACK-HD and COHORT studies proposes a way to design of clinical trials designed to delay the onset of HD, rather than treating symptoms after they occur. Click here to read the full article.

Cure for Huntington’s disease Within Reach
Third Force News – November 1, 2017

A cure for Huntington’s disease (HD) is within reach, a charity conference has heard. Dr Ed Wild, one of the world’s leading researchers into the degenerative neurological condition said research into treatments for the condition was now on a “knife edge.” Click here to read the full article.

Sheep Surprise Scientists With Facial Recognition
Global National – November 9, 2017 – 12m35s

Researchers at the University of Cambridge discover that sheep can recognize human faces from photos. Researchers say that sheep can be used to understand disorders of the brain. HSC CEO Bev Heim-Myers discusses how this can be helpful for HD research. Click here to watch the full video.

Plant Study Reveals Mechanism That May Explain Protein Folding in Human Disease
Huntington’s Disease News – October 26, 2017

A Spanish study investigating the functioning of chloroplasts — the nutrient-producing “factory” of plants — has revealed a new mechanism that helps understand how a cell controls and regulates protein folding mechanisms. Click here to read the full article.

ENROLL-HD – NOVEMBER 2017

Click here to check out the latest updates in Enroll-HD’s monthly bulletin.

       

 


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