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In the Know – March 2019

VOLUME 14, ISSUE 3

 

RESEARCH NEWS

HDBUZZ recaps the 2019 Huntington Disease Therapeutics Conference

GENE THERAPY CANDIDATE AMT-130 SHOWS PROMISE IN PRECLINICAL FINDINGS
Huntington’s Disease News – March 7, 2019

Encouraging new preclinical data on AMT-130, uniQure’s experimental gene therapy candidate for Huntington’s disease, were presented at the 14th Annual Huntington’s disease Therapeutics Conference.  Click here to read the full story.

When Interrupting is Good
HDBuzz – March 14, 2019

Multiple teams find small differences in ‘CAG’ repeat bit of the Huntingon’s disease gene.  They don’t directly change the huntingtin protein, but do alter the age of symptom onset.  What’s behind this enigma and what does it mean for patients?  Find out here. 

COMMUNITY NEWS

REAL LIFE TALKS WITH YVONNE HEATH

Steven Beatty, HD Community Member from the Muskoka area spent some time with Yvonne Heath and the show “Real Life Talks”. Watch it here.

FUNDRAISER TO HELP FIGHT HUNTINGTON DISEASE

The Sarnia Observer – February 25, 2019

It wasn’t until she organized a fundraiser for the Huntington Society of Canada last March that Celine Payne met other residents in the Sarnia area impacted by Huntington disease.  Read the full article here.

THEY’RE BOWLING TO BEAT HUNTINGTON DISEASE

Sarnia & Lambton Country This Week – March 5, 2019

Celine Payne is looking to enlist some local heroes to help raise money in the fight against Huntington disease.  Click here to read the full article.  

LOVE YOUR LIFE TO DEATH

At the Huntington Society of Canada’s National Conference in Kelowna, Yvonne Heath gave her presentation “I Just Showed Up”. Presenting at the Conference certainly left the HD community feeling empowered, and left Yvonne wanting to help the HD community even further. She is doing so by donating 25% of sale proceeds of her book, Love Your Life to Death: How to Plan and Prepare for End of Life so You Can Live Fully Now, to the Huntington Society of Canada. Click here for more information and to purchase your copy.

HSC NEWS

COMMUNITY EDUCATION FORUMS

The Huntington Society of Canada invites you to attend its biennial Community Education Forum for presentations on research and caregiving.

Every other year, HSC provides a live forum wherein patients and carers can meet to learn about the most recent updates in HD, network with other patients and perhaps most importantly, have the opportunity to have their questions answered by leading professionals who specialize in HD.

For more information and to register, please click here.

CHAMPION OF HOPE

Did you know that a donation of $25/month provides a mentor the support and resources required to mentor a youth from our HD community? Click here to learn more about our Champion of Hope monthly giving program.

       

 


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