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In The Know – June 2016

Volume 11, Issue 6

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NEWS

Huntington Society of Canada

Hike for Huntington’s doubles last year’s funds
Exeter Today – June 9, 2016

The 10th annual Hike for Huntington Disease in Exeter last Saturday is being deemed a huge success. Donations are still being tallied with more coming in every day but already event organizers, Lindsay Groot and the Knights of Columbus, say over $31,000 has been raised – that’s almost double from 2015’s hike! To check out the radio interview clip, click here.

Huntington Society of Canada’s Go Kart Challenge
The Buzz – June 2016

Join the PEI Chapter of the Huntington Society of Canada for the PEI Indy Go-Kart Challenge on June 25, Canada’s largest fundraising Go-Kart event! See the full listing here.

IMPACT Race Report
IMPACT Magazine – Jun-Jul 2016

The June 26 Run & Hike for Huntington Disease is a great way to spend time with nature in Toronto. See the full listing here.

What’s Up! Community Billboard
CAM FM 98.1 – June 2016

The Camrose Chapter of the Huntington Society of Canada is holding a golf tournament to help support families in the Camrose area touched by Huntington disease, will you be joining them? See the full listing here.

Windsor men cycling across Canada for Huntington disease
Regina Leader-Post – May 30, 2016

Marty and Jim have been cycling day after day, which they say has  been challenging, but seeing Canada at a bicycle’s pace has been a great experience: “We get to see so many more things and we get to meet so many more people” than if they were driving, said Denonville. To read the full article, click here. To learn more about the ride, and to see if Marty & Jim will be stopping by in your area, click here.

2016 Amaryllis Campaign

Hope is blooming with orange sovereigns! The 2016 Amaryllis Campaign is in full swing, and inspiring hope is as easy as planting a flower. To encourage more orders, we are having an Early Bird Draw for a Fit Bit Charge for anyone who places an order before July 1st. Place your order today and check out our beautiful new box design on Facebook, where you can also learn more about the campaign. ​

PSA Campaign

To learn more about our PSA campaign, What is Huntington Disease?, and to see where the radio and tv ads are airing in your region, click here.

RESEARCH NEWS

Huntingtin takes a trip: harmful proteins pass between brain cells
HDBuzz – Jun 06, 2016

HDBuzz takes a look at the harmful clumps of misfolded huntingtin protein that can travel between brain cells via messenger particles called exosomes.  Read the full article here.

Enroll-HD – May 2016

Check out the latest updates in Enroll-HD’s monthly bulletin here, and their quarterly newspaper, the Spring 2016 edition, here.

Canadian Dementia Priority Setting Partnership
Survey open until August 1st, 2016.

The Canadian Dementia Priority Setting Partnership is asking Canadians about their priorities for dementia research.  The goal is to gain more insight from individuals affected and their caregivers from across the country. The survey is open to all Canadians and is available in English here and French here.

Huntington Study Group

For more information about high-quality clinical research trials and studies in Huntington disease (HD), the Huntington Study Group offers the first and largest HD clinical research network of over 400 active and compassionate investigators, coordinators, scientists and HD experts at over 100 HSG Credentialed Research Sites across the globe dedicated to seeking treatments that make a difference and improving the quality of life and outcomes for families affected by HD. Click here to visit their page.

Video Postcard from the 2016 HD Therapeutics Conference
CHDI Foundation

Click here to watch the postcard from Palm Springs.

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