VOLUME 15, ISSUE 1
RESEARCH NEWS
WAVE Precision-HD2 Update
(HSC Website: Jan. 2, 2020)
Wave Life Sciences has announced encouraging topline results from their PRECISION-HD2 program. Read the offical news release issued, plus a letter to the HD community, including some FAQs.
Unpacking WAVE’s Precision-HD2 Huntingtin-Lowering Trial Announcement
(HDBuzz.net, Jan. 3, 2020)
Wave Life Sciences announces that its antisense drug WVE-120102 has lowered mutant huntingtin protein in cerebrospinal fluid, but investors seem disappointed. Rather confusing – what do we know for sure?
Engineering Student Wins Prestigious Global Innovation Award
(McMaster.ca: Jan. 13, 2020)
Lianna Genovese’s project, Guided Hands, uses a 3D-printed ergonomic handpiece to enable people with reduced fine motor skills — including those with dystonia, ALS, Huntington’s disease, arthritis, stroke or spinal cord injuries — to complete everyday tasks.
U-I Researchers Win Grant to Continue Work on Huntington’s Disease
(KMAland.com: Jan. 11, 2020)
Medical researchers at the University of Iowa have landed a substantial grant to continue their work in unlocking a potential cure for Huntington’s disease.
OF INTEREST
We Are Trying to Address Rare Disorders
(Express Healthcare: Jan. 14, 2020)
Recently, Bengaluru-based Vikram Hospital in India opened a state-of-the-art ‘Center of Excellence’ for Huntington Disease. Dr Prashanth LK, Consultant Movement Disorders Specialist, Vikram Hospital, Bengaluru gives more details on the hospital’s plan.
Applications Now Open: Patients and Caregivers Take on Technology Conference
(ams-inc.on.ca: Jan. 15, 2020)
AMS Healthcare, the Ontario Caregiver Organization, The Change Foundation and the Canadian Foundation for Healthcare Improvement are pleased to announce that applications are now being accepted for a one-day conference focused on providing patients and caregivers an opportunity to define their expectations for quality compassionate care in a digital healthcare system.
Alzheimer’s Awareness Campaign Challenges Stigma for North Thompson Residents Affected by Dementia
(North Thompson Star/Journal: Jan. 4, 2020)
Dementia is not a specific disease. Many diseases can cause dementia, including Alzheimer’s disease, vascular dementia (due to strokes), Lewy Body disease, head trauma, fronto-temporal dementia, Creutzfeldt-Jakob disease, Parkinson’s disease, and Huntington’s disease. These conditions can have similar and overlapping symptoms.
HSC NEWS
As we begin 2020, it’s a good time to remind our community that the HSC national office has moved to Waterloo, ON. Now is a great time to update our mailing address in your records.
Our phone lines, email addresses and website all remain as they were. It’s business as usual!
HSC EVENTS
Tickets Now on Sale for Toronto Sports Getaway Raffle!
Support the Huntington Society of Canada (HSC) by participating in this year’s Sports Getaway Raffle and help raise money for family services and research towards a cure. Enter to win one of our amazing price packages for a fun weekend getaway in Toronto! Each prize is valued over $2,000!
Save the Date! HSC National Conference
We are looking forward to the next National Conference in 2020 in Niagara Falls, ON! Check back often as more details are confirmed and look for our snappy new conference logo on future communications!
HOW YOU CAN HELP
20x20x20 HSC Facebook Fundraisers
Start off the new year right and join the Facebook 20x20x20 Challenge this January! Our goal is for 20 people to host a Facebook Fundraiser in January, asking at least 20 friends/family members to donate $20.00! Hosting a Facebook Fundraiser is super easy! Go to https://www.facebook.com/fundraisers/, click “select non-profit”.
Then, type in Huntington Society of Canada, input your goal and you’re on your way!
If you have any questions, contact us at events@huntingtonsociety.ca. We can’t wait to see what we’re able to accomplish together this month!”
Champion of Hope
By joining our Champions of Hope monthly giving program, you support individuals and families affected by Huntington disease every single day. Our Champions of Hope provide a vital and vibrant support network, and your gifts go to work in your community and across Canada. To become a monthly donor visit click here.