(HD Buzz: July 17, 2019)
(Huntington’s Disease News: August 13, 2019)
Patients at a pre-symptomatic stage of Huntington’s disease have marked difficulties recognizing and understanding negative and neutral mental states of other individuals, regardless of gender, a study has found.
(Medical Express (Cell): August 8, 2019)
New research results published in the journal Cell, call into question an accepted theory about the timing of HD onset.
(August 7, 2019)
The Huntington Society of Canada is very excited to announce the beginning of a new service: an online support group.
As this is an initial step into virtual support, we have decided to start with an at-risk group as our pilot group. We anticipate a few different groups to begin following the completion of this group and its evaluation.
(HSC Website, July 2019)
Most people wish to live in their own homes as long as they can. With increasing care needs, however, attempting to live at home can become extremely stressful and challenging, both for the person who is ill, as well as for family carers. The emotional and physical health of the entire family unit can be affected.
HD COMMUNITY NEWS
(HDYO News Release)
The Huntington’s Disease Youth Organization (HDYO) will hold the world’s first International Young Adults Conference for 18-35 year-olds impacted by HD in Glasgow, Scotland from May 9-11, 2020.
SUPPORT AND PROFILES
(MyKemptvilleNow.com: August 13, 2019)
Brewed Awakenings is offering any size coffee or tea for $2 on Thursday, with all proceeds going to the Huntington Society of Canada.
Young People Affected by Huntington disease (YPAHD) Day is a one-day conference in Calgary, Toronto or Halifax, designed specifically for youth affected by HD (14-35 years of age). Learn about genetic testing, family planning, caring for someone with HD, navigating relationships, think about event planning during the round table discussions and more…!
The Huntington Society of Canada invites you to attend its annual Community Educational Forum for presentations on research and caregiving. Generously sponsored by Roche, Wave Life Sciences and uniQure.
Every other year, HSC provides a live forum wherein patients and carers can meet to learn about the most recent updates in HD, network with other patients and perhaps most importantly, have the opportunity to have their questions answered by leading professionals who specialize in HD.
For more information and to register for your local CEF, click here.
CAN’T ATTEND A CEF? ….SAVE THE DATE – Nov. 2, 2019!
If you can’t attend a local CEF in person, our CEF Virtual Day will be held on November 2, 2019. More details to come!
There are many events going on across Canada all summer to raise awareness and support for Huntington disease. Click here and check back regularly to find out what is happening in your area!
HOW YOU CAN HELP
Have you purchased your Amaryllis yet for the 2019 Campaign? We plan to sell out of bulbs again this year and are encouraging people to get their orders in! If you have never sold Amaryllis before, and would like find out more about this rewarding opportunity to raise funds for HD while inspiring hope in people’s homes, visit www.huntingtonsociety.ca/amaryllis-campaign/.
To order your Amaryllis, or to reach out with any questions about the Amaryllis Campaign or how to become a seller, visit our website at www.inspirehope.ca, email us at firstname.lastname@example.org or call 1-800-998-7398. Orders can be made at any time, with delivery dates from October 2 to December 6, 2019.
Thank you for your continuing support and all you are doing to help us Inspire Hope!
Did you know that a donation of $30/month enhances direct support services (including counseling, research and recreational programs) for someone with HD for a year? Click here for more information on how to become a monthly donor today!
You can purchase a beautifully designed t-shirt in memory of Victoria St. Amand. The t-shirts are being promoted to continue Vicki’s legacy of raising funds for HD research and services. The t-shirt will be mailed to you for a donation of $40, which includes shipping.
You can make a donation and order online by clicking here.