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In the Know – August 2016

Volume 11, Issue 8

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NEWS

TWO FOUR ONE

Welcome home Marty & Jim!
TwoFourOne Blog – Aug 1, 2016

Marty Denonville’s son, Alex, recaps the epic 72 day journey his father and his friend, Jim Stewart, undertook for Huntington disease. Click here to see the recap – complete with stories from the ride, pictures and videos!

Retirees cycle across Canada to raise awareness about Huntington Disease
CBC News – Jul 26, 2016

Two for One cyclists Marty Denonville and Jim Stewart cycled across Canada to raise awareness about Huntington disease and finished their 72-day trek in St. John’s on July 25th. To read the full article, click here. To learn more about their ride, click here.

Cycling duo rides across Canada to big surprise in Quidi Vidi
NTV – July 25, 2016

Two Four One‘s Marty and Jim cycled all the way across Canada to raise money for HD and recieved a big surprise when they arrived at Quidi Vidi Beach for their finale. Check out the video segment of the finale here.

HSC

Go-Karting for Huntington Disease
Blackburn News – Aug 14, 2016

Come out to support Huntington disease awareness and raise funds for a great cause while zooming through the Zap Zone Fun Centre’s lap in Windsor. See more about the event here.

Photos from the Heroes Run for Huntington Disease 5k/10k run and 5k hike/walk
Snapd North Toronto – Aug 1, 2016

It was a great day for Heroes. The 8th annual run, hike & walk in support of Huntington Society of Canada’s programs of services in our community was a huge success. 300 runners, 60 plus volunteers, many generous sponsors and donations brought in $45,000. To see photos from the event, click here.

Middleton conquers first Ironman test
BC Local News – Jul 26, 2016

HSC volunteer Dan  Middleton accomplished quite a difficult feat. In awe of Ironman Canada, Dan fulfilled a dream late last month, completing the race. Dan placed 667th overall, completing a 2.4 mile swim, 112 mile bike ride and 26 mile run in 13 hours 52 minutes and 25 seconds! Read the full article here.

Dr Ed Wild talks about Huntington disease on Woman’s Hour
UCL Huntington Disease Centre – July 15, 2016

Frequent HSC collaborator and dear friend Dr. Ed Wild appeared on BBC Radio 4′ Woman’s Hour to discuss Huntington disease with Jenni Murray and a brave and inspiration HD family member, Susan Fletcher. You can find the link to the BBC Radio segment here.

2016 Amaryllis Campaign

The Amaryllis flower is a beautiful flower to have throughout your house. When you look at it, you can see the hope it represents for all those affected by Huntington disease and the bright orange will lighten up any room it is planted in. There are still plenty of bulbs available for purchase-all with our new box cover design. October is the best time to start planting them, so make sure you get your order in soon! Visit our Facebook page, or e-mail amaryllis@huntingtonsociety.com to place your order today. Visit inspirehope.ca to learn more and participate in this year’s campaign.

PSA Campaign

To learn more about our PSA campaign, What is Huntington Disease?, and to see where the radio and tv ads are airing in your region, click here.

Help raise awareness and funds!
HealthPartners

The Huntington Society of Canada is looking for volunteers to engage donors at various workplaces across Canada through our partnership with HealthPartners.  If you enjoy public speaking, and are looking for a way to increase HD awareness in your community please contact us at info@huntingtonsociety.ca for more information on this unique volunteer opportunity. To learn more about HealthPartners, click here.

The Power of the Dream
Terry Kelly

Life offers everyone gifts disguised as challenges. This is one of the messages Dr. Terry Kelly delivers in his keynote addresses. Terry is the living model of his message, understanding his blindness as a gift that opens possibility and opportunity. Dr. Kelly, a speaker at this year’s national conference, discusses his message in greater detail here. To register for national conference before ticket prices go up, click here.

RESEARCH NEWS

A support system gone wrong – glial cells contribute to HD symptoms
HDBuzz – Aug 2, 2016

A new piece of research has implicated a type of brain cells called glia in the development of HD symptoms. Regular mice injected with glial cells carrying the mutant huntingtin gene in the study developed symptoms associated with HD. Read the full article here.

Could trashing junk proteins squash Alzheimer’s, Parkinson’s ALS and Huntington’s?
Scientific American – July 26, 2016

Although clutter can be a nuisance, it does not typically pose a health threat—unless you’re an aging neuron. As brain cells get older, some proteins within and around the cell misfold. That’s why scientists are searching for a a drug to clear cellular debris. Read the informative breakdown here.

Researcher hopeful, sure of future cure for Huntington disease
Huntington’s Disease News  – Jul 22, 2016

Dr. Edward J. Wild, of the National Hospital for Neurology & Neurosurgery, London, has a unique perspective on Huntington disease (HD). He believes the currently incurable neurological condition is ideal for certain treatment, based on the clear and universal cause of the disease. Read the full article here.

Huntington Study Group

For more information about high-quality clinical research trials and studies in Huntington disease (HD), the Huntington Study Group offers the first and largest HD clinical research network of over 400 active and compassionate investigators, coordinators, scientists and HD experts at over 100 HSG Credentialed Research Sites across the globe.

Video Postcard from the 2016 HD Therapeutics Conference
CHDI Foundation

Click here to watch the postcard from Palm Springs.

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