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In the Know – April 2017

Volume 12, Issue 4

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HSC NEWS

Preparing for the meeting with Pope Francis, a heartening milestone in the Huntington’s disease movement At-Risk for HD Blog – April 9, 2017

Gene Veritas discusses the upcoming HDdennomore: Pope Francis’ special audience with the HD community in solidarity with South America. Click here to read the full piece.

Superior Customer Satisfaction for Steeltown Ford Interlake Today – March 31, 2017

The Steeltown team is dedicated to Selkirk and supports a different local charity or cause each month through dealer-run fundraising initiatives, as well as organizing their own snowmobile fundraisers. Past recipients include the Huntington Society of Canada. Read the full article here.

Eli and the Strawman: ON TOUR NOW

Click here to check out their full tour dates.

Volunteering, Eh? April 23-29 is National Volunteer Week

We’re celebrating National Volunteer Week  with Volunteer Canada. Here at HSC, we’re celebrating by highlighting some of our volunteers. To see how some of our volunteers have made a positive impact in the HD community, click here. Follow along on our FacebookTwitter and Instagram pages to see what others are saying as well!

Thank you to our Champions of Hope

We are truly thankful to our Champions of Hope monthly donors who create a real difference and inspire hope in the HD community. Our Champions ongoing support enables breakthrough research and provides much needed services to individuals and families.  To become a Champion of Hope, please click here.

Amaryllis Campaign

Thank you for joining us in the 2016 Amaryllis Campaign. Your feedback is important to us. We invite you to take a moment and participate in a survey to help us make the 2017 Amaryllis Campaign an even bigger success. Please click here to complete the survey – it’ll only take two minutes! Thank you.

Family Services Staff Announcements

Meg McConkey, Family Services Worker in Brandon, Manitoba, has announced her plans to retire from social work effective May 30th, 2017. Meg has been working with the Huntington Society of Canada (HSC) since 2008. She has served the HD community with exemplary skill and compassion and has shared her vast knowledge and experience. To read the full announcement, please visit this page.

RESEARCH NEWS

FDA approves a new drug for symptoms of Huntington’s disease HDBuzz – April 5, 2017

USA’s drug regulator, the FDA, has formally approved Austedo, also known as deutetrabenazine, for prescribing in HD. This modified form of tetrabenazine helps control chorea, the jerky movements often found in HD patients, but is taken twice rather than three times a day. Click here to read the full article.

Sheep leading the flock: metabolism and biomarkers in HD HDBuzz – March 27, 2017

Beyond affecting movement, mood, and thinking, HD involves a complex set of changes to the body that can be difficult to predict in different individuals. Recently, researchers were able to identify consistent early changes in metabolism by studying a group of HD sheep. Read the full piece here.

Huntington Study Group

For more information about high-quality clinical research trials and studies in Huntington disease (HD), the Huntington Study Group offers the first and largest HD clinical research network of over 400 active and compassionate investigators, coordinators, scientists and HD experts at over 100 HSG Credentialed Research Sites across the globe.

Enroll-HD – March 2017

Click here to check out the latest updates in Enroll-HD’s monthly bulletin.

CALL FOR BOARD MEMBERS HUNTINGTON SOCIETY OF CANADA

Are you a supporter of the Huntington Society of Canada? Interested in getting more involved? HSC is now accepting nominations to its Board of Directors for vacancies beginning in 2017 and 2018. The national board includes 15 directors from across the country who combine enthusiasm for the Society’s work with expertise in one or more areas of business including law, fundraising, communications, strategic planning, media and human resources. Forward your CV and letter of interest outlining your skills and experience to:

Huntington Society of Canada
151 Frederick St, Suite 400 Kitchener, ON N2H 2M2
ATTN: HSC Board

All nominations received by May 7, 2017 will be considered.

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