Skip Content
 
Page Banner Image

FuRST 2.0

Back to map

The study is a single, cross-sectional cognitive interview of FuRST 2.0, functional rating scale, administered to Huntington’s Disease Gene Expansion Carriers (HDGECs). The scale will be tested as a patient reported outcome (PRO) in that the information will come directly from the participant through self-report.

 

Status
Not yet recruiting

Formal/Alternative Name
FuRST 2.0: Cognitive Pre-testing for a New Functional Rating Scale for Use in Huntington’s Disease – Round 2

Study Type
Observational

Purpose
The purpose is to identify real or potential comprehension or usage problems with scale items, response options, instructions and disclaimer statement, which are all components of the FuRST 2.0 scale. Through a structured cognitive interview with the participants, followed by qualitative analysis, the final phrasing of the individual scale items, response options, instructions and disclaimer statement for the scale will be generated. Depending on the results of this study, additional rounds of cognitive pre-testing may be required.

Canadian Locations and Contact Information:

Toronto, ON

Status: Not yet recruiting
Location: Centre for Movement and Disorders at 1 Valleybrook Drive, Suite 400, Toronto, ON M3B 2S7
Coordinator: Teena Kailasanathan
Phone: 416-847-7084 ext. 235

Exclusion Criteria  (eligibility that would exclude you from this study)

  • Significant cognitive or any other impairment sufficient to interfere with study associated tasks as judged by the site PI or the site PI’s designee

Source

ClinicalTrials.gov A service of the U.S. National Institutes of Health
This study is currently recruiting participants. (see Contacts and Locations)

For more detailed information on this study and others and for the most recent updates, please go to clinicaltrials.gov ClinicalTrials.gov is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world.

 

Back to map


We support those facing huntington disease
 Latest Blog
 Questions

Questions

Let Us Know How We Can Help
Enter your name, email address and question(s) below for assistance.

 Connect
 Newsletter

Newsletter

Stay in Touch!
Enter your email address below to receive occasional updates.

Newsletter Sign-up