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Bev Heim-Myers, CEO, Announces Her Retirement from HSC – November 15, 2017

The Huntington disease community in Canada, and globally, has never been in a better position to realize the dream of a “world free from Huntington disease.”

For over 7 years, Bev Heim-Myers has brought passion and purpose to HSC, leading us to this important point in our organization’s history.

Under Bev’s guidance, the work of the Society has grown. More families are now served by our amazing network of social workers and research funding has increased, including our two million dollar research partnership with Brain Canada.

Through Bev’s leadership of the Canadian Coalition of Genetic Fairness, an individual’s genetic test information is now protected and her work has resulted in Huntington Society of Canada being recognized as a global leader in the clinical trial readiness space.

Bev assembled a team of the best and brightest, not only across the Society but through worldwide HD connections, increasing awareness, resources and vital partnerships.

Bev will continue to lead the Society until the end of May, 2018. The search for a new leader will begin shortly. The Board of Directors has formed a search committee which will be led by Past Chair, Susan Wright.

Bev will be missed, although I believe she will never be far away supporting us as we continue to move forward. We are so happy for Bev, as she makes the transition into retirement to spend more time with her family and her 5 little grandchildren.

At the Huntington Society of Canada, it is business as usual. The staff are busy supporting families, preparing for YPAHD Day, working with all our Chapters and volunteers, planning for the 2018 National Conference, raising awareness and more support, and preparing for our next set of research investments.

On behalf of the Board of Directors of the Huntington Society of Canada, thank you Bev. We have achieved so much and come so far. You have made a true difference in the lives of families impacted by HD, both in Canada and globally. There is so much hope as we look to the future, and you have made that future brighter for all of us.


Brenda Nowakowski (Wasylow)

Chair, Board of Directors

Huntington Society of Canada


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