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Information for professionals serving the HD community to better understand the disease, in order to provide the best care and service possible to individuals with HD and their families.
Below you will find HSC publications, excerpts from those publications and fact sheets.
Publications
A Caregiver's Handbook for Advance-Stage Huntington Disease
Genetic Testing for HD
Personal Perspectives on Genetic Testing for Huntington Disease
What is HD Brochure
Understanding Behaviour in HD: A Practical Guide
Loss and Grief: Coping with the death of a loved one and other losses
HSC: We're Here to Help
Publication Excerpts
Advanced Stage Medical Issues
Driving
Eating and Nutrition
Exercise and Fitness
Genetics
Keeping Communication Lines Open
Other Issues
Personal Care
Preventing Falls
Preventing Swallowing Problems
Smoking
The Cognitive Disorder
The Movement Disorder
The Psychiatric Disorder
Understanding Changes in Mood
Understanding Cognitive Changes
Fact Sheets
Fact Sheets for Healthcare Professionals:
Managing Behaviour in Huntington Disease
Improving Communication in Huntington Disease
Diet in Huntington Disease
Palliative Care for Individuals in Late-Stage Huntington Disease
End-of-Life Issues in Huntington Disease
Exercise for People Living with Huntington Disease
Assessing Physiotherapy Needs of People Living with Huntington Disease
Physiotherapy Outcome Measures in Huntington Disease
Minimizing Risk in Huntington Disease
Behavioural Changes
Cognitive Changes
Dental Care
Depression and HD
Driving
Eating and Swallowing
Feeding Tubes
Future Planning
How to Find the Help You Need
Juvenile HD
Learning About HD- A Child's Response
Living at Risk
Predictive Testing
Sexuality
Strategies to Enhance Communication
Suggestions to Help Children Cope
Talking to Children About HD