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HD/HSC in the Media

June 18, 2009- CBC Radio One "Ontario Today"
On Thursday, June 18 the CBC Radio program "Ontario Today" aired a segment profiling Kim Wedgerfield of Thunder Bay. A world class tri-athlete who has survived 3 near-fatal car accidents, only to be told she has Huntington's disease. The program profiles how her drive to compete is affecting her illness. And why researchers around the world are looking at the relationship between execise and degenerative diseases.

Click here to listen to the program

March 25, 2009- CBC Radio One "The Current"
On Wednesday, March 25, 2009 on the CBC Radio One program "The Current" a segment about the HD documentary "Twice Lost" aired.

To listen to the segment click here (Part 2: Twice Lost Documentary)

We wish to thank the CBC, Alison Myers and Ron and Kerry for the courageous and moving human interest story, broadcast on The Current on March 26, 2009, about how the lives of the members of one family have been forever changed by Huntington disease.  This documentary brings greater awareness of Huntington disease (HD) and hopefully a deeper understanding of this devastating disorder, which translates to additional support for families.

The symptoms of HD symptoms vary from person to person, and effects individuals and families in different ways. However, help and support is crucial for all families, as they deal with each progressive loss. 

For those in need of support, the Huntington Society of Canada provides a network of social workers across the country to support families - they provide information, guidance, mutual support, counselling, and referral services for effected individual, caregivers, and people at risk, including children. In addition, our staff advocate for families and work with professionals to enable them to understand the disease and to support families, by offering a continuum of care.

The Huntington Society also funds vital research in the ongoing search for treatments. For information about Huntington disease and how you can help, or about the services available in your community, simply contact the Huntington Society of Canada at 1-800-998-7398 or info@huntingtonsociety.ca

UPDATE:
The CBC received so much feedback from the HD community that on Thursday, April 2, 2009, during the letters segment, “The Current” read some of those letters they received in response to the segment.

Click here to listen to the segment (Part 3: Letters)

March 6, 2009 - Dr. Hayden Video Presentation
Dr. Hayden’s presentation from January 18, 2009 in Toronto on Personalized Medicine: Hype or Hope- A Canadian Perspective is now available to be viewed on the internet along with his PowerPoint presentation slides.

Click here to access the video

June 8, 2008- HD in New York Magazine
This week, New York magazine features its annual Best Doctors issue and, in one story, poses one of the most difficult questions of the DNA age: If one of your parents has a fatal genetic disease, should you or shouldn’t you get tested? Writer Kevin Baker discusses his mother’s battle with Huntington’s and his own battle deciding whether or not he should be tested for a disease he has a 50% chance of inheriting….

Click here to read the article


March 9, 2008- Washington Post Feature Article on HD and Caregiving
On Sunday, March 9, 2008 washingtonpost.com posted a feature article profiling a man and his wife and their life with Huntington disease.

The article examines "Family Caregiving" and the implications it has on the modern family.

To read the article please click here

October 13, 2007- HD Feature Article in The Globe & Mail
The Huntington Society of Canada is thrilled to announce that a feature article about Huntington disease (HD) appears in the Saturday (October 13) Globe and Mail (Focus- a special pull out section). The article profiles the disease, the search for a treatment, the people affected and how they live with the knowledge of HD.

To find out more and read the article click here