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Every child, adult and family deserves a safe place to land.

$3 million is needed over the next 2 years
  • $1.5 million is needed to invest in discovery research, leading to treatments for Huntington disease
  • $1.5 million is needed to increase services to families, individuals and youth

Be a leader in the evolution towards a future where Huntington disease no longer ravages the mind and body by investing in these two key areas, where our goals are simple but the impact is profound.

  • More research funding is required to facilitate discoveries and the resources available for HD scientists. We need to strategically invest now in research leading to a better understanding or treatments for Huntington disease, and to expand capacity for clinical trials to keep the momentum going.
  • Every child, individual and family deserves a safe place to land. To make this happen for those affected by Huntington disease, we need to increase accessibility to support and services to include everyone affected by Huntington disease, including those in rural and diverse communities.

Research

Investing in Impactful Research to Expedite Discovery and Build Capacity

The Huntington Society of Canada’s research program focuses on building critical mass in Huntington disease research. Only projects that meet our standard of excellence, as rated by our experts through a peer review process, are eligible to receive funding. Annually, the number of excellent research projects that show promise in ending or slowing down the process of HD put forward by the research peer review committee as fundable, exceed the funding available.

Accessibility to Services 

Going Forward Together

Youth under 25 make up 29% of the Canadian population and represent the future. You can make a difference for a youth affected by Huntington disease by ensuring they are supported and by investing in youth specific programs.

1/5500 Canadians have Huntington disease and 1/1000 Canadian are at-risk for, affected or touched by HD. Based on these statistics, we are currently only reaching about 11% of Canadians affected by HD. 

There are people impacted by HD not yet being reached who need your help. Those affected by HD in rural areas are isolated, having to deal with HD on their own. Services, clinical trials and treatments need to be accessible to everyone. It is also necessary to connect with more people to expedite discovery and clinical trials.


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